Annual awards celebrating outstanding achievements by people living with a rare disease and those making a difference across the rare disease community (patient advocacy, policy, science, care, industry and beyond).
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1 event,
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Annual awards celebrating outstanding achievements by people living with a rare disease and those making a difference across the rare disease community (patient advocacy, policy, science, care, industry and beyond). |
1 event,
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A short webinar to launch a new, friendly guide to Equality, Diversity and Inclusion (EDI) in Public and Patient Involvement (PPI). |
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2 events,
Webinar on the use of platform technologies in the non-clinical and clinical domains
The proposal for the EU pharmaceutical legislation introduces the concepts of platform technologies and platform marketing authorisation. The European Medicines Agency organises a webinar bringing together regulators and medicine developers to discuss the use of platform technologies beyond the quality and manufacturing domains. We invite interested parties to share insights and case studies on the use […]
Data, ethics and AI training for rare disease advocates
The training responds to the growing need for patient advocates to understand data management, ethical considerations and the role of AI in rare disease research. |
2 events,
Advancement of Treatments for Rare Diseases
The two-day event will focus on translating research and policy initiatives into tangible benefits for Rare Disease patients through better prevention, diagnosis, and treatment. |
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1 event,
Data, ethics and AI training for rare disease advocates
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1 event,
Data, ethics and AI training for rare disease advocates
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1 event,
Data, ethics and AI training for rare disease advocates
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1 event,
Data, ethics and AI training for rare disease advocates
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