blank
blank
Nov
10
2024

Our mission | Daria Julkowska, ERDERA Scientific Coordinator

Daria Julkowska

For millions of people, rare diseases are more than just statistics—they are daily challenges, unanswered questions, and battles for better care. At ERDERA, our mission is simple but urgent: to improve the lives of over 30 million people living with rare diseases in Europe. In this video, Daria Julkoska, ERDERA’s Coordinator, explains the three essential ways how ERDERA plans to work towards a brighter future for people living with rare diseases.

News & Updates

You might also be interested in

Gdańsk - Medical University of Gdańsk

From Hyderabad to Gdansk: collaborative diagnostic efforts that bridge research and clinical practice to shorten patients’ path to answers

ERDERA joins the Wilhelm Foundation and the Gdansk Medical University and Clinical Centre to strengthen phenotype‑led diagnosis for people living with undiagnosed conditions
NMGs Sofia

Countries step up joint approaches to rare disease research at first in person ERDERA National Alignment Board meeting

Taking place at a pivotal moment – with the European Rare Disease Plan expected to move forward significantly during 2026 – the meetings brought together National Mirror Group (NMG) representatives from Europe and beyond, alongside European Commission stakeholders, IRDiRC and international partners.
Captura de pantalla 2026-04-08 142004

Advancement of Treatments for Rare Diseases

The two-day event will focus on translating research and policy initiatives into tangible benefits for Rare Disease patients through better prevention, diagnosis, and treatment.
European Parliament

European Parliament draft report urges a binding EU rare disease action framework

A legislative own initiative file in the Parliament’s new public health committee sets out what an EU “rare disease action framework” could look like — and why it could change how Europe measures progress for patients.

ERDERA's

search form