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About
About ERDERA
Rare Disease Dashboard
Beneficiaries and Participants
Structure and Governance
Who we are
Privacy Policy
Living with rare
Research Services
Funding
Clinical Research Network
Data Hub
Expertise services
Erdera accelerator
Training and education
International Alignment
News & Updates
Resources
Events Calendar
RD Virtual Platform
Innovation Management Toolbox (IMT)
ERN consented forms
Contact Us
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Tag: Surveys and Polls
EU consultation on disability rights seeks evidence to strengthen inclusive research and data ecosystems
November 28, 2025
Inviting views on how a stronger EU disability strategy up to 2030 can support inclusive research, data sharing and innovation.
Survey re-opened: help pinpoint where consultancy makes the biggest difference in rare disease research
November 12, 2025
Community input invited on practical consultancy needs in rare disease research.
EMA opens public consultations on patient experience data and use of external controls
October 14, 2025
EMA invites feedback to strengthen how the EU generates and uses evidence that reflects what matters to patients, including in rare diseases
ERDERA launches survey to put rare-disease patients at the heart of research
May 27, 2025
New survey aims to give under-represented countries a stronger voice in rare-disease research
April 23, 2025
SANT Launches Public Consultation on Rare Diseases
March 3, 2025
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About
About ERDERA
Rare Disease Dashboard
Beneficiaries and Participants
Structure and Governance
Who we are
Privacy Policy
Living with rare
Research Services
Funding
Clinical Research Network
Data Hub
Expertise services
Erdera accelerator
Training and education
International Alignment
News & Updates
Resources
Events Calendar
RD Virtual Platform
Innovation Management Toolbox (IMT)
ERN consented forms
Contact Us