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About ERDERA
Rare Disease Dashboard
Beneficiaries and Participants
Structure and Governance
Who we are
Privacy Policy
Living with rare
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Clinical Research Network
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National Mirror Group
Tag: National Mirror Group
ERDERA, RealiseD and INVENTS to lead workshop at WODC Europe 2025
October 1, 2025
Less than a month to the World Orphan Drug Congress Europe.
Clinical Research
Data Hub
ERDERA
Funding
Patient Involvement (PPIE)
“ERDERA could become a model of how to align large-scale, cross-border research with real patient needs, so that the knowledge gained is translated into tangible benefits”
July 9, 2025
Erdera interviews Tomasz Grybek, patient representative and caregiver
International Alignment
Patient Involvement (PPIE)
“There’s a lot of value in connecting with other countries — learning what has worked, what hasn’t, and applying those lessons”
June 11, 2025
International Alignment
Patient Involvement (PPIE)
“The National Mirror Group was the first time patients had been treated as equal partners in this kind of forum, and it immediately changed the conversation”
June 4, 2025
International Alignment
Patient Involvement (PPIE)
Europe’s rare-disease alliance charts next steps at Riga workshop
June 3, 2025
International Alignment
New survey aims to give under-represented countries a stronger voice in rare-disease research
April 23, 2025
International Alignment
Patient Involvement (PPIE)
EU rare disease conference concludes in Warsaw with renewed focus on early diagnosis and collaborative research
April 14, 2025
Clinical Research
International Alignment
Patient Involvement (PPIE)
Rare Disease conference kicks off in Warsaw: Building momentum for a unified EU strategy
April 10, 2025
Rare disease experts to gather in Warsaw to shape Europe’s future strategy
March 27, 2025
Accelerator
Rare disease day 2025: ERDERA charts the path forward in collaborative research
March 3, 2025
ERDERA
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About
About ERDERA
Rare Disease Dashboard
Beneficiaries and Participants
Structure and Governance
Who we are
Privacy Policy
Living with rare
Research Services
Funding
Clinical Research Network
Data Hub
Expertise services
Erdera accelerator
Training and education
International Alignment
News & Updates
Resources
RD Virtual Platform
ERN consented forms