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About
About ERDERA
Rare Disease Dashboard
Beneficiaries and Participants
Structure and Governance
Who we are
Privacy Policy
Living with rare
Research Services
Funding
Clinical Research Network
Data Hub
Expertise services
Erdera accelerator
Training and education
International Alignment
News & Updates
Resources
RD Virtual Platform
ERN consented forms
Contact Us
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European Medicines Agency
Tag: European Medicines Agency
High-Level Meeting on a European Research and Innovation Ecosystem for Rare Diseases
November 25, 2025
Gathering key stakeholders, including EU policymakers, industry leaders, patient advocacy groups, researchers, and healthcare providers. Its goal is to identify concrete actions and incentives to enhance innovation across the rare disease ecosystem.
Accelerator
Clinical Research
Funding
International Alignment
Patient Involvement (PPIE)
ERDERA at WODC Europe 2025: wrap up and next steps
October 29, 2025
Sharing patient‑centred methods, early diagnostics, and data‑driven trial innovation to accelerate rare disease research across Europe.
Clinical Research
Data Hub
ERDERA
Funding
International Alignment
Patient Involvement (PPIE)
ERDERA, RealiseD and INVENTS to lead workshop at WODC Europe 2025
October 1, 2025
Less than a month to the World Orphan Drug Congress Europe.
Clinical Research
Data Hub
ERDERA
Funding
Patient Involvement (PPIE)
EMA warns of unregulated advanced therapies in the EU
March 21, 2025
Expertise Services
International Alignment
EMA Calls for Registrations in Real-World Data Catalogues
March 10, 2025
Data Hub
Expertise Services
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About
About ERDERA
Rare Disease Dashboard
Beneficiaries and Participants
Structure and Governance
Who we are
Privacy Policy
Living with rare
Research Services
Funding
Clinical Research Network
Data Hub
Expertise services
Erdera accelerator
Training and education
International Alignment
News & Updates
Resources
RD Virtual Platform
ERN consented forms
Contact Us