Tag: Early diagnosis

“I hope ERDERA solidifies the mindset that no single group—be it clinicians, patients, researchers, public authorities, or private entities—can succeed alone” Alexandre Mejat

“I hope ERDERA solidifies the mindset that no single group—be it clinicians, patients, researchers, public authorities, or private entities—can succeed alone”

“Knowing there’s a place where someone will listen, understand, and guide you towards what’s best for your child is invaluable

“Knowing there’s a place where someone will listen, understand, and guide you towards what’s best for your child is invaluable.”

Exterior of European Medicines Agency in Amsterdam

EMA warns of unregulated advanced therapies in the EU

Irene Norstedt

Irene Norstedt: “The EU supports collaboration because no country alone, and no stakeholder alone, has the answer for such huge unmet needs in rare disease research”

WhatsApp-Image-2025-03-05-at-19.25.34-scaled-e1741249993654

RE(ACT) Congress and IRDiRC Conference 2025 concludes with calls for stronger collaboration on rare diseases

Transforming Rare Disease Research in Europe

ERDERA: Transforming Rare Disease Research in Europe

ERDERA's

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