Tag: Daria Julkowska

EDERA WODC & GAM - Preview- JVDPhotography-4

ERDERA Open Session: science and advocacy align to advance rare disease research and care

Amsterdam and online, convening clinicians, scientists and advocates to share progress and the power of patient led policy to improve diagnosis and care.
EDERA WODC & GAM - Preview- JVDPhotography-1-min

ERDERA at WODC Europe 2025: wrap up and next steps

Sharing patient‑centred methods, early diagnostics, and data‑driven trial innovation to accelerate rare disease research across Europe.
download (12)

ERDERA and the European Genomic Data Infrastructure project work together to strengthen rare disease data, diagnostics and research

Fruitful collaboration ahead
Erdera Open Session 1-1

Join ERDERA’s Open Session on 30 October and get inspired by leading voices in rare disease research 

International Patient Organisation for Primary Immunodeficiencies IPOPI

Patients as equal partners – ERDERA’s vision echoes in Brussels

collaborative research abstract watercolor

New toolkit strengthens collaboration between ERNs and industry

Daria Julkowska ERDERA Science Webinar

Scientific Coordinator Daria Julkowska contributes to Science Magazine and Ipsen Foundation’s high-level webinar on rare disease research collaboration 

Triplet repeat expansion project sets benchmark for public-private collaboration

Triplet repeat expansion project sets benchmark for public-private collaboration

ERDERA’s Networking Support Scheme opens to forge new rare disease and rare cancer alliances

ERDERA’s Networking Support Scheme opens to forge new rare disease and rare cancer alliances

World Health Assembly adopts first-ever resolution on rare diseases, signalling a new era of global collaboration

World Health Assembly adopts first-ever resolution on rare diseases, signalling a new era of global collaboration

VIEW MORE

ERDERA's

search form