Tag: Daria Julkowska

Patients as Equal Partners – ERDERA’s PPIE Vision Echoes in Brussels

New Toolkit Strengthens Collaboration Between ERNs and Industry

Scientific Coordinator Daria Julkowska contributes to Science Magazine and Ipsen Foundation’s high-level webinar on rare disease research collaboration 

Triplet repeat expansion project sets benchmark for public-private collaboration

ERDERA’s Networking Support Scheme opens to forge new rare disease and rare cancer alliances

World Health Assembly adopts first-ever resolution on rare diseases, signalling a new era of global collaboration

EU rare disease conference concludes in Warsaw with renewed focus on early diagnosis and collaborative research

Rare Disease conference kicks off in Warsaw: Building momentum for a unified EU strategy

ERDERA joins the 5th International Conference on Rare Diseases 

Rare disease experts to gather in Warsaw to shape Europe’s future strategy