Tag: Daria Julkowska

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ERDERA and the European Genomic Data Infrastructure project work together to strengthen rare disease data, diagnostics and research

Fruitful collaboration ahead
Erdera Open Session 1-1

Join ERDERA’s Open Session on 30 October and get inspired by leading voices in rare disease research 

International Patient Organisation for Primary Immunodeficiencies IPOPI

Patients as equal partners – ERDERA’s vision echoes in Brussels

collaborative research abstract watercolor

New toolkit strengthens collaboration between ERNs and industry

Daria Julkowska ERDERA Science Webinar

Scientific Coordinator Daria Julkowska contributes to Science Magazine and Ipsen Foundation’s high-level webinar on rare disease research collaboration 

Triplet repeat expansion project sets benchmark for public-private collaboration

Triplet repeat expansion project sets benchmark for public-private collaboration

ERDERA’s Networking Support Scheme opens to forge new rare disease and rare cancer alliances

ERDERA’s Networking Support Scheme opens to forge new rare disease and rare cancer alliances

World Health Assembly adopts first-ever resolution on rare diseases, signalling a new era of global collaboration

World Health Assembly adopts first-ever resolution on rare diseases, signalling a new era of global collaboration

EU rare disease conference concludes in Warsaw with renewed focus on early diagnosis and collaborative research

EU rare disease conference concludes in Warsaw with renewed focus on early diagnosis and collaborative research

Representatives from patient organisations advocated for robust data platforms and research partnerships
Rare Disease conference kicks off in Warsaw

Rare Disease conference kicks off in Warsaw: Building momentum for a unified EU strategy

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