Feb
08
2025

Rare Disease Community | Dorica Dan

“Knowing there’s a place where someone will listen, understand, and guide you towards what’s best for your child is invaluable

🗣 Throughout the week leading to Rare Disease Day 2025, we will be sharing insights from diverse voices highlighting key pathways to improving the lives of those affected. ️

In this video, Dorica Dan, rare disease carer and EURORDIS-Rare Diseases Europe Vice-Director, highlights the profound importance of early diagnosis for people living with a rare disease and their families – even when no treatment is available. 🔍

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