Category: International Alignment

XVII Foresight Training Course

XVII Foresight Training Course | From research to access: how does Europe speed up the availability of medicines for unmet needs?

WODC 1200 x 1200 (Generic)

World Orphan Drug Congress Europe 2025

Tomasz Grybek

“ERDERA could become a model of how to align large-scale, cross-border research with real patient needs, so that the knowledge gained is translated into tangible benefits”

Erdera interviews Tomasz Grybek, patient representative and caregiver
“There’s a lot of value in connecting with other countries — learning what has worked, what hasn’t, and applying those lessons”

“There’s a lot of value in connecting with other countries — learning what has worked, what hasn’t, and applying those lessons”

“The National Mirror Group was the first time patients had been treated as equal partners in this kind of forum, and it immediately changed the conversation”

“The National Mirror Group was the first time patients had been treated as equal partners in this kind of forum, and it immediately changed the conversation”

Europe’s rare-disease alliance charts next steps at Riga workshop

Europe’s rare-disease alliance charts next steps at Riga workshop

World Health Assembly adopts first-ever resolution on rare diseases, signalling a new era of global collaboration

World Health Assembly adopts first-ever resolution on rare diseases, signalling a new era of global collaboration

“I hope ERDERA solidifies the mindset that no single group—be it clinicians, patients, researchers, public authorities, or private entities—can succeed alone” Alexandre Mejat

“I hope ERDERA solidifies the mindset that no single group—be it clinicians, patients, researchers, public authorities, or private entities—can succeed alone”

New survey aims to give under-represented countries a stronger voice in rare-disease research

New survey aims to give under-represented countries a stronger voice in rare-disease research

EU rare disease conference concludes in Warsaw with renewed focus on early diagnosis and collaborative research

EU rare disease conference concludes in Warsaw with renewed focus on early diagnosis and collaborative research

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