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Category: Expertise Services

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Exploring consultancy needs for rare disease research

Mapping needs leads to tailored solutions
Magda Cheblus

“The notion that public-private collaboration is inherently problematic doesn’t align with current realities. Not only is it possible—it is necessary, beneficial, and more straightforward than many assume.”

Triplet repeat expansion project sets benchmark for public-private collaboration

Triplet repeat expansion project sets benchmark for public-private collaboration

World Health Assembly adopts first-ever resolution on rare diseases, signalling a new era of global collaboration

World Health Assembly adopts first-ever resolution on rare diseases, signalling a new era of global collaboration

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Together4RD x ERDERA: Launch of the Toolkit for Public-Private Partnerships in Rare Disease Research

Exterior of European Medicines Agency in Amsterdam

EMA warns of unregulated advanced therapies in the EU

Latest Developments in Good Clinical Practice

EMA Calls for Registrations in Real-World Data Catalogues

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Training for Resources joining the Rare Diseases Virtual Platform