Category: Accelerator

WODC27102025

ERDERA’s workshop draws strong engagement at WODC Europe

Enhancing active patient involvement and data models across rare disease research.
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ERDERA workshop to widen participation of underrepresented countries in rare disease research

20–21 November — A practical ERDERA workshop to connect researchers, clinicians, patients and funders from underrepresented countries to strengthen capacity for inclusive rare disease research.
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ERDERA pre announces 2026 Call for Proposals on resolving unsolved rare diseases through variant validation and new technologies

The 2026 Joint Transnational Call will be launched on 10 December, with a free information webinar on 16 December
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ERDERA and the European Genomic Data Infrastructure project work together to strengthen rare disease data, diagnostics and research

Fruitful collaboration ahead
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ERDERA-GDI Official Joint Workshop

14 October 2025, Paris NovoHotel Tour Eiffel & Online
Rare disease experts to gather in Warsaw to shape Europe’s future strategy

Triplet repeat expansion project sets benchmark for public-private collaboration

ERDERA group photo from the workshop

Multi stakeholder workshop advances prioritisation of rare diseases for ATMP development

A practical framework in the making
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Exploring consultancy needs for rare disease research

Mapping needs leads to tailored solutions
Magda Cheblus

“The notion that public-private collaboration is inherently problematic doesn’t align with current realities. Not only is it possible—it is necessary, beneficial, and more straightforward than many assume.”

collaborative research abstract watercolor

New toolkit strengthens collaboration between ERNs and industry

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