Category: Accelerator

Exploring consultancy needs for rare disease research

Mapping needs leads to tailored solutions

“The notion that public-private collaboration is inherently problematic doesn’t align with current realities. Not only is it possible—it is necessary, beneficial, and more straightforward than many assume.”

New Toolkit Strengthens Collaboration Between ERNs and Industry

Publication

Under the banner “Bridging Research and Care for Patients,” discussions delved into targeted newborn screening programs, advanced clinical trials, and innovative translational reçsearch platforms.

Triplet repeat expansion project sets benchmark for public-private collaboration

World Health Assembly adopts first-ever resolution on rare diseases, signalling a new era of global collaboration

Rare disease experts to gather in Warsaw to shape Europe’s future strategy

ERDERA at the Chan Zuckerberg Initiative workshop on systematically characterising rare diseases

Irene Norstedt: “The EU supports collaboration because no country alone, and no stakeholder alone, has the answer for such huge unmet needs in rare disease research”

SANT Launches Public Consultation on Rare Diseases