Category: Accelerator

World Orphan Drug Congress USA 2026

December 5, 2025

More than 280 speakers from industry, regulators, patient organisations, investors and healthcare providers, and aims to showcase new science, technologies and policies that can accelerate orphan drug development and improve access to therapies for people living with rare conditions.

Accelerator Clinical Research Data Hub Expertise Services International Alignment Patient Involvement (PPIE)

High-Level Meeting on a European Research and Innovation Ecosystem for Rare Diseases

November 25, 2025

Gathering key stakeholders, including EU policymakers, industry leaders, patient advocacy groups, researchers, and healthcare providers. Its goal is to identify concrete actions and incentives to enhance innovation across the rare disease ecosystem.

Accelerator Clinical Research Funding International Alignment Patient Involvement (PPIE)

Survey re-opened: help pinpoint where consultancy makes the biggest difference in rare disease research

November 12, 2025

Community input invited on practical consultancy needs in rare disease research.

Accelerator Data Hub ERDERA Expertise Services Patient Involvement (PPIE)

Accelerating Innovation Through Coordinated Research Platforms: The ERDERA Approach

November 10, 2025

On November 12 at 11:00am (GMT+3) , IBG RareBoost will host Dr. Başak Uysal from the ERDERA Coordination Team. She will deliver a presentation titled “Accelerating Innovation Through Coordinated Research Platforms: The ERDERA Approach.”

Accelerator Clinical Research Data Hub Funding International Alignment

ERDERA Open Session: science and advocacy align to advance rare disease research and care

October 30, 2025

Amsterdam and online, convening clinicians, scientists and advocates to share progress and the power of patient led policy to improve diagnosis and care.

Accelerator Clinical Research Data Hub ERDERA Expertise Services Funding International Alignment Patient Involvement (PPIE) Training & Education

ERDERA’s workshop draws strong engagement at WODC Europe

October 27, 2025

Enhancing active patient involvement and data models across rare disease research.

Accelerator Clinical Research Data Hub ERDERA Expertise Services Patient Involvement (PPIE)

ERDERA workshop to widen participation of underrepresented countries in rare disease research

October 27, 2025

20–21 November — A practical ERDERA workshop to connect researchers, clinicians, patients and funders from underrepresented countries to strengthen capacity for inclusive rare disease research.