Prevention. Diagnosis. Treatment.
This is our pledge to 30+ million people living with a rare disease in Europe
Training & Education
ERDERA’s
A European learning hub, raising rare-disease know-how.
ERDERA Funding
The ERDERA Networking Support Scheme (NSS) Call is open!
News & Press Releases
News & Updates
“Data is the fuel of ERDERA’s mission to enhance our insights in rare diseases, to expedite diagnosis, and to find new treatments”
Join ERDERA’s Open Session on 30 October and get inspired by leading voices in rare disease research
Research Services
our mission
Goals & Impacts
Unify knowledge, resources and expertise
ERDERA brings under one roof a broad range of high-value services, resources and cross-disciplinary expertise to support rare disease research projects across Europe, from planning and design to efficient execution.
Boost clinical research with and for patients
Enabling every consenting patient living with a rare disease to be findable and enrolled in a suitable clinical study that matches their needs and preferences is a core goal in ERDERA. Empowered patients can contribute to the generation of high-quality evidence to improve diagnosis, understanding of diseases and develop treatments.
Spur innovation and EU competitiveness
The new partnership aims to make Europe a global leader in rare disease research by increasing investment to spur innovation, aligning regional, national and European research strategies, and fostering collaboration among all stakeholders at global scale.
Events
Join ERDERA’s Open Session on 30 October and get inspired by leading voices in rare disease research
World Orphan Drug Congress Europe 2025
Applications for Open Academy Schools 2026
Community voices, fresh funding calls, news, events, training opportunities and accessible resources