Advancing prevention, diagnosis and treatment research for the 30 million people living with a rare disease in Europe.

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Look for ERDERA's booth at the World Orphan Drug Congress in Amsterdam

Open Session

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Join ERDERA’s

Join the free and online public session on 30th of October

ERDERA Funding

The ERDERA Networking Support Scheme (NSS) Call is open!

LATEST

News & Press Releases

2nd International Conference on Clinical Research Networks: Connected for impact

ERDERA, RealiseD and INVENTS to lead workshop at WODC Europe 2025

Less than a month to the World Orphan Drug Congress Europe.

XVII Foresight Training Course | From research to access: how does Europe speed up the availability of medicines for unmet needs?

From discussion to action: a hands‑on conference to help shape the rare disease clinical research roadmap

9–10 December 2025, Heidelberg and online — practical sessions with an agreed delivery to accelerate research

our mission

Goals & Impacts

Unify knowledge, resources and expertise

ERDERA brings under one roof a broad range of high-value services, resources and cross-disciplinary expertise to support rare disease research projects across Europe, from planning and design to efficient execution.

Boost clinical research with and for patients

Enabling every consenting patient living with a rare disease to be findable and enrolled in a suitable clinical study that matches their needs and preferences is a core goal in ERDERA. Empowered patients can contribute to the generation of high-quality evidence to improve diagnosis, understanding of diseases and develop treatments.

Spur innovation and EU competitiveness

The new partnership aims to make Europe a global leader in rare disease research by increasing investment to spur innovation, aligning regional, national and European research strategies, and fostering collaboration among all stakeholders at global scale.

Upcoming Events

Oct
09
- 11
Oct
Thursday,
All day
Rikli Balance Hotel, Bled
The 15th Balkan Congress of Human Genetics and the 3rd Alpe Adria Meeting of Human Genetics will take place from 9–11 October 2025 at the Rikli Balance Hotel,...
Oct
27
- 28
Oct
Monday,
All day
No Venue Found
We’re pleased to announce that ERDERA will be attending #WODC2025 in Amsterdam on 27–28 October, driving collaboration and advancing research in the field of rare diseases. Come and...
Oct
30
Thursday,
09:00 am-11:20 pm
No Venue Found
ERDERA will mark its 1st anniversary with a stimulating online event open to the entire rare disease community. Leading experts in the field of neurology, neurometabolic diseases and...
Nov
03
- 04
Nov
Monday,
2:00 pm - 12:00 am
No Venue Found
The course will focus on the current status and advancements of clinical research especially to address unmet medical needs. Innovative methodologies, regulatory challenges, and the involvement of adolescents...

NEWSLETTER

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