Tag: Underrepresented Countries

Gdańsk - Medical University of Gdańsk

From Hyderabad to Gdansk: collaborative diagnostic efforts that bridge research and clinical practice to shorten patients’ path to answers

ERDERA joins the Wilhelm Foundation and the Gdansk Medical University and Clinical Centre to strengthen phenotype‑led diagnosis for people living with undiagnosed conditions
NMGs Sofia

Countries step up joint approaches to rare disease research at first in person ERDERA National Alignment Board meeting

Taking place at a pivotal moment – with the European Rare Disease Plan expected to move forward significantly during 2026 – the meetings brought together National Mirror Group (NMG) representatives from Europe and beyond, alongside European Commission stakeholders, IRDiRC and international partners.
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Joining the Dots: EURORDIS’ role in ERDERA and the reshaping of rare disease research

EURORDIS champions patient-centred innovation in rare disease research
online workshop

Underrepresented countries help shape ERDERA’s roadmap for a more inclusive European rare disease research ecosystem

Successful online workshop connects underrepresented European countries in rare disease research
15th Balkan Congress

A landmark gathering brings together regional leaders in human genetics to reshape genomic medicine

From 9 to 11 October in Bled, the 15th Balkan Congress and 3rd Alpe Adria Meeting put rare disease diagnostics and predictive genomics centre stage.
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The involvement of underrepresented countries in the European rare diseases research alliance: Morocco’s assets

Using Morocco as a case study, this paper shows how underrepresented countries contribute unique genetic insights to rare disease research and why their integration into initiatives like ERDREA is essential for both scientific progress and equity.
webinar

ERDERA workshop to widen participation of underrepresented countries in rare disease research

20–21 November — A practical ERDERA workshop to connect researchers, clinicians, patients and funders from underrepresented countries to strengthen capacity for inclusive rare disease research.
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Networking of underrepresented countries for the enhancement of rare disease research

Presenting new evidence from an ERDERA survey across more than 30 countries and co‑create practical solutions to improve inclusion, networking and capacity development.
man working in a lab

ERDERA pre announces 2026 Call for Proposals on resolving unsolved rare diseases

The 2026 Joint Transnational Call will be launched on 10 December, with a free information webinar on 16 December
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ERDERA Clinical Research Network Jamboree: Including underrepresented countries into innovative diagnostic research

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