Tag: Training and Education

Amsterdam and online, convening clinicians, scientists and advocates to share progress and the power of patient led policy to improve diagnosis and care.
Sharing patient‑centred methods, early diagnostics, and data‑driven trial innovation to accelerate rare disease research across Europe.
Three afternoons of expert talks, case studies and interactive sessions to explore the value, practice and future of making rare disease data FAIR.
A new edition of “Navigating Rare Disease Research: Data, Ethics and AI in Europe” will follow suit