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Clinical Research Patient Involvement (PPIE) Training & Education

ERDERA launches survey to put rare-disease patients at the heart of research

May 27, 2025

International Alignment Patient Involvement (PPIE)

New survey aims to give under-represented countries a stronger voice in rare-disease research

April 23, 2025

Accelerator

SANT Launches Public Consultation on Rare Diseases

March 3, 2025