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About ERDERA
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Who we are
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Living with rare
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Sophie Skoubo
Tag: Sophie Skoubo
“If we can remove some of the barriers to accessing education—both visible and invisible—then we could support people with rare diseases in the right way”
May 14, 2025
Clinical Research
Patient Involvement (PPIE)
Training & Education
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About
About ERDERA
Rare Disease Dashboard
Beneficiaries and Participants
Structure and Governance
Who we are
Privacy Policy
Living with rare
Research Services
Funding
Clinical Research Network
Data Hub
Expertise services
Erdera accelerator
Training and education
International Alignment
News & Updates
Resources
RD Virtual Platform
ERN consented forms
Contact Us
