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About
About ERDERA
Rare Disease Dashboard
Beneficiaries and Participants
Structure and Governance
Who we are
Privacy Policy
Living with rare
Research Services
Funding
Clinical Research Network
Data Hub
Expertise services
Erdera accelerator
Training and education
International Alignment
News & Updates
Resources
Events Calendar
RD Virtual Platform
Innovation Management Toolbox (IMT)
ERN consented forms
Contact Us
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Rare Disease Day
Tag: Rare Disease Day
Unity in action: Rare Disease Day 2026 campaign launches with a renewed focus on equity
November 20, 2025
A global movement, coordinated by EURORDIS in partnership with 72 national alliances, amplifying representation and accelerate fair access to diagnosis, care and research.
ERDERA
International Alignment
Patient Involvement (PPIE)
Rare Disease Community | Tomasz Grybek
June 18, 2025
Patient Involvement (PPIE)
Rare disease day 2025: ERDERA charts the path forward in collaborative research
March 3, 2025
ERDERA
Rare Disease Community | Dorica Dan
February 8, 2025
Patient Involvement (PPIE)
Rare Disease Community | Alexandre Méjat
February 8, 2025
Patient Involvement (PPIE)
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About
About ERDERA
Rare Disease Dashboard
Beneficiaries and Participants
Structure and Governance
Who we are
Privacy Policy
Living with rare
Research Services
Funding
Clinical Research Network
Data Hub
Expertise services
Erdera accelerator
Training and education
International Alignment
News & Updates
Resources
Events Calendar
RD Virtual Platform
Innovation Management Toolbox (IMT)
ERN consented forms
Contact Us