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About
About ERDERA
Rare Disease Dashboard
Beneficiaries and Participants
Structure and Governance
Who we are
Privacy Policy
Living with rare
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Clinical Research Network
Data Hub
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Erdera accelerator
Training and education
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RD Virtual Platform
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Tag: patients
ERDERA, RealiseD and INVENTS to lead workshop at WODC Europe 2025
October 1, 2025
Less than a month to the World Orphan Drug Congress Europe.
Clinical Research
Data Hub
ERDERA
Funding
Patient Involvement (PPIE)
XVII Foresight Training Course | From research to access: how does Europe speed up the availability of medicines for unmet needs?
October 1, 2025
Clinical Research
Expertise Services
Funding
International Alignment
Patient Involvement (PPIE)
Training & Education
Europe’s rare-disease alliance charts next steps at Riga workshop
June 3, 2025
International Alignment
ERDERA launches survey to put rare-disease patients at the heart of research
May 27, 2025
Clinical Research
Patient Involvement (PPIE)
Training & Education
New survey aims to give under-represented countries a stronger voice in rare-disease research
April 23, 2025
International Alignment
Patient Involvement (PPIE)
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About
About ERDERA
Rare Disease Dashboard
Beneficiaries and Participants
Structure and Governance
Who we are
Privacy Policy
Living with rare
Research Services
Funding
Clinical Research Network
Data Hub
Expertise services
Erdera accelerator
Training and education
International Alignment
News & Updates
Resources
RD Virtual Platform
ERN consented forms