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13th European Conference on Rare Disease and Orphan Drugs

November 25, 2025

The European Conference on Rare Diseases & Orphan Products (ECRD) is the largest patient-led policy-shaping event on rare diseases in Europe.

Clinical Research ERDERA Expertise Services Funding International Alignment Patient Involvement (PPIE)

One month to go: register now for the 2nd International Conference on Clinical Research Networks

November 14, 2025

9-10 December, Heidelberg and online — last places for in person attendance; free livestream for registered participants.

Clinical Research Data Hub ERDERA International Alignment Patient Involvement (PPIE)

ERDERA at WODC Europe 2025: wrap up and next steps

October 29, 2025

Sharing patient‑centred methods, early diagnostics, and data‑driven trial innovation to accelerate rare disease research across Europe.

Clinical Research Data Hub ERDERA Funding International Alignment Patient Involvement (PPIE)

2nd International Conference on Clinical Research Networks: Connected for impact

October 13, 2025

Join the 2nd International Conference on Clinical Research Networks: Connected for impact!

Clinical Research

From discussion to action: a hands‑on conference to help shape the rare disease clinical research roadmap

October 1, 2025

9–10 December 2025, Heidelberg and online

Clinical Research ERDERA

RE(ACT) Congress and IRDiRC Conference 2025

February 25, 2025

Welcome to the pinnacle event in rare diseases research – the RE(ACT) Congress and IRDiRC Conference 2025, held jointly by the BLACKSW

Clinical Research International Alignment Patient Involvement (PPIE)