“The National Mirror Group was the first time patients had been treated as equal partners in this kind of forum, and it immediately changed the conversation”
“If we can remove some of the barriers to accessing education—both visible and invisible—then we could support people with rare diseases in the right way”
“I hope ERDERA solidifies the mindset that no single group—be it clinicians, patients, researchers, public authorities, or private entities—can succeed alone”
