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About ERDERA
Rare Disease Dashboard
Beneficiaries and Participants
Structure and Governance
Who we are
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Living with rare
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Clinical Research Network
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Huntington's disease
Tag: Huntington’s disease
ERDERA Open Session: science and advocacy align to advance rare disease research and care
October 30, 2025
Amsterdam and online, convening clinicians, scientists and advocates to share progress and the power of patient led policy to improve diagnosis and care.
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ERDERA
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Patient Involvement (PPIE)
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SANT Launches Public Consultation on Rare Diseases
March 3, 2025
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About
About ERDERA
Rare Disease Dashboard
Beneficiaries and Participants
Structure and Governance
Who we are
Privacy Policy
Living with rare
Research Services
Funding
Clinical Research Network
Data Hub
Expertise services
Erdera accelerator
Training and education
International Alignment
News & Updates
Resources
RD Virtual Platform
ERN consented forms
Contact Us
