Tag: EURORDIS–Rare Diseases Europe

Open Academy Schools 2026: applications open 8 September 2025

A new edition of “Navigating Rare Disease Research: Data, Ethics and AI in Europe” will follow suit

Applications for Open Academy Schools 2026

“ERDERA could become a model of how to align large-scale, cross-border research with real patient needs, so that the knowledge gained is translated into tangible benefits”

Erdera interviews Tomasz Grybek, patient representative and caregiver

Rare Disease Community | Tomasz Grybek

Rare Disease Community | Tomasz Grybek

EU rare disease conference concludes in Warsaw with renewed focus on early diagnosis and collaborative research

Rare Disease conference kicks off in Warsaw: Building momentum for a unified EU strategy

“Knowing there’s a place where someone will listen, understand, and guide you towards what’s best for your child is invaluable.”

Rare Disease Community | Dorica Dan

Rare Disease Community | Tomasz Grybek

Rare Disease Community | Alexandre Méjat

Rare Disease Community | Tomasz Grybek