Tag: EURORDIS–Rare Diseases Europe

Open Academy Schools 2026: applications open 8 September 2025

Open Academy Schools 2026: applications open 8 September 2025

A new edition of “Navigating Rare Disease Research: Data, Ethics and AI in Europe” will follow suit
Collaboration - Open Academy Schools 2025 High engagement, deeper impact

Applications for Open Academy Schools 2026

Tomasz Grybek

“ERDERA could become a model of how to align large-scale, cross-border research with real patient needs, so that the knowledge gained is translated into tangible benefits”

Erdera interviews Tomasz Grybek, patient representative and caregiver
Tomasz Grybek

Rare Disease Community | Tomasz Grybek

EU rare disease conference concludes in Warsaw with renewed focus on early diagnosis and collaborative research

EU rare disease conference concludes in Warsaw with renewed focus on early diagnosis and collaborative research

Representatives from patient organisations advocated for robust data platforms and research partnerships
Rare Disease conference kicks off in Warsaw

Rare Disease conference kicks off in Warsaw: Building momentum for a unified EU strategy

“Knowing there’s a place where someone will listen, understand, and guide you towards what’s best for your child is invaluable

“Knowing there’s a place where someone will listen, understand, and guide you towards what’s best for your child is invaluable.”

“Knowing there’s a place where someone will listen, understand, and guide you towards what’s best for your child is invaluable

Rare Disease Community | Dorica Dan

Alexandre Mejat

Rare Disease Community | Alexandre Méjat

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