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About ERDERA
Rare Disease Dashboard
Beneficiaries and Participants
Structure and Governance
Team
Privacy Policy
Living with rare
Research Services
ERDERA Funding
Clinical Research
Data Hub
Expertise services
Erdera accelerator
Training and education
International Alignment
Latest
Resources
RD Virtual Platform
ERN consented forms
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EURORDIS–Rare Diseases Europe
Tag: EURORDIS–Rare Diseases Europe
Training & Education
Open Academy Schools 2026: applications open 8 September 2025
July 31, 2025
A new edition of “Navigating Rare Disease Research: Data, Ethics and AI in Europe” will follow suit
Patient Involvement (PPIE)
Training & Education
Applications for Open Academy Schools 2026
July 25, 2025
International Alignment
Patient Involvement (PPIE)
“ERDERA could become a model of how to align large-scale, cross-border research with real patient needs, so that the knowledge gained is translated into tangible benefits”
July 9, 2025
Erdera interviews Tomasz Grybek, patient representative and caregiver
Patient Involvement (PPIE)
Rare Disease Community | Tomasz Grybek
June 18, 2025
Rare Disease Community | Tomasz Grybek
Clinical Research
International Alignment
Patient Involvement (PPIE)
EU rare disease conference concludes in Warsaw with renewed focus on early diagnosis and collaborative research
April 14, 2025
Rare Disease conference kicks off in Warsaw: Building momentum for a unified EU strategy
April 10, 2025
International Alignment
Patient Involvement (PPIE)
“Knowing there’s a place where someone will listen, understand, and guide you towards what’s best for your child is invaluable.”
April 8, 2025
Patient Involvement (PPIE)
Rare Disease Community | Dorica Dan
February 8, 2025
Rare Disease Community | Tomasz Grybek
Patient Involvement (PPIE)
Rare Disease Community | Alexandre Méjat
February 8, 2025
Rare Disease Community | Tomasz Grybek
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About
About ERDERA
Rare Disease Dashboard
Beneficiaries and Participants
Structure and Governance
Team
Privacy Policy
Living with rare
Research Services
ERDERA Funding
Clinical Research
Data Hub
Expertise services
Erdera accelerator
Training and education
International Alignment
Latest
Resources
RD Virtual Platform
ERN consented forms
Contact Us