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About
About ERDERA
Rare Disease Dashboard
Beneficiaries and Participants
Structure and Governance
Who we are
Privacy Policy
Living with rare
Research Services
Funding
Clinical Research Network
Data Hub
Expertise services
Erdera accelerator
Training and education
International Alignment
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Resources
RD Virtual Platform
ERN consented forms
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Data Collection and Sharing
Tag: Data Collection and Sharing
Global audience joins FAIR Training Webinar to strengthen data practices in rare disease research
October 10, 2025
A successful training event with 350 registrations from 58 countries and daily attendance averaging 160 participants
Data Hub
What to expect at the FAIR Training Webinar 2025
September 23, 2025
Three afternoons of expert talks, case studies and interactive sessions to explore the value, practice and future of making rare disease data FAIR.
Training & Education
“Data is the fuel of ERDERA’s mission to enhance our insights in rare diseases, to expedite diagnosis, and to find new treatments”
August 20, 2025
ERDERA interviews Ronald Cornet
Data Hub
FAIR Training Program 2025 – 2027 Part 1 opens registration
July 22, 2025
Data Hub
Training & Education
Rare disease day 2025: ERDERA charts the path forward in collaborative research
March 3, 2025
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About
About ERDERA
Rare Disease Dashboard
Beneficiaries and Participants
Structure and Governance
Who we are
Privacy Policy
Living with rare
Research Services
Funding
Clinical Research Network
Data Hub
Expertise services
Erdera accelerator
Training and education
International Alignment
News & Updates
Resources
RD Virtual Platform
ERN consented forms
Contact Us