Tag: AI technologies

Task-Forces-IRDiRC

IRDiRC launches call for experts for four new rare disease activities

Rare disease researchers, clinicians, patient advocates and data experts are invited to help shape four new IRDiRC activities linked to the new IRDiRC Roadmap, with applications closing on 20 February 2026.
1767801707477

Data, ethics and AI training for rare disease advocates

The training responds to the growing need for patient advocates to understand data management, ethical considerations and the role of AI in rare disease research.
15th Balkan Congress

A landmark gathering brings together regional leaders in human genetics to reshape genomic medicine

From 9 to 11 October in Bled, the 15th Balkan Congress and 3rd Alpe Adria Meeting put rare disease diagnostics and predictive genomics centre stage.
Irene Norstedt

Irene Norstedt: “The EU supports collaboration because no country alone, and no stakeholder alone, has the answer for such huge unmet needs in rare disease research”

ERDERA's

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