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About
About ERDERA
Rare Disease Dashboard
Beneficiaries and Participants
Structure and Governance
Who we are
Privacy Policy
Living with rare
Research Services
Funding
Clinical Research Network
Data Hub
Expertise services
Erdera accelerator
Training and education
International Alignment
News & Updates
Resources
Events Calendar
RD Virtual Platform
Innovation Management Toolbox (IMT)
ERN consented forms
Contact Us
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Tag: AI technologies
Data, ethics and AI training for rare disease advocates
January 9, 2026
The training responds to the growing need for patient advocates to understand data management, ethical considerations and the role of AI in rare disease research.
A landmark gathering brings together regional leaders in human genetics to reshape genomic medicine
December 1, 2025
From 9 to 11 October in Bled, the 15th Balkan Congress and 3rd Alpe Adria Meeting put rare disease diagnostics and predictive genomics centre stage.
Irene Norstedt: “The EU supports collaboration because no country alone, and no stakeholder alone, has the answer for such huge unmet needs in rare disease research”
March 11, 2025
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About
About ERDERA
Rare Disease Dashboard
Beneficiaries and Participants
Structure and Governance
Who we are
Privacy Policy
Living with rare
Research Services
Funding
Clinical Research Network
Data Hub
Expertise services
Erdera accelerator
Training and education
International Alignment
News & Updates
Resources
Events Calendar
RD Virtual Platform
Innovation Management Toolbox (IMT)
ERN consented forms
Contact Us