Over the past six years, the Rare Disease Cures Accelerator – Data and Analytics Platform (RDCA-DAP) has grown from a bold concept into a mature, global resource powering rare disease drug development. This webinar will present key achievements of RDCA-DAP in building a multi-disease rare disease database, fostering a collaborative data ecosystem through partnerships with external platforms, and providing open data and analytics tools to support regulators, industry, researchers and patient communities.
Speakers will share concrete, data-driven examples from RDCA-DAP task forces – small, focused public–private partnerships designed to address unmet needs, streamline development efforts and enable regulatory-grade solutions for rare diseases. The session will conclude with a multi-stakeholder panel discussion on why data sharing remains critically important and how it can “move mountains” for people living with rare diseases.
We are pleased to announce that the panel will include Federico Álvarez, co-leader of ERDERA Work Package 14 (Data Readiness Services), who will bring EU/ERDERA perspectives on building a FAIR, regulatory-aligned rare disease data and analytics ecosystem.
This webinar is particularly relevant for ERDERA partners involved in the Clinical Research Network, the Data Services Hub, and the Expertise Services Hub, and for all colleagues working on data readiness and reuse for cure acceleration.
Registration: https://c-path-org.zoom.us/webinar/register/WN_q316ecsMQ4Km2pBQPyqzeA