The second edition of the Data, Ethics and AI training is here! Developed under ERDERA – the European Rare Diseases Research Alliance, this second edition responds to the growing need for patient advocates to understand data management, ethical considerations and the role of AI in rare disease research, and to engage meaningfully with researchers and decision-makers.
This hybrid programme will combine online training from March to July 2026 (6–8 hours spread over 5 months) and iIn-person sessions on 14–15 September 2026 in Barcelona.
Applications close 2 February 2026.
Learn more & apply here.

