Category: Clinical Research

ERDERA group photo from the workshop

Multi stakeholder workshop advances prioritisation of rare diseases for ATMP development

A practical framework in the making
Training online

ERDERA launches online training on managing multinational clinical trials for rare diseases

Defining roles and responsibilities across stakeholders
Rare Disease Day ERDERA Charts the Path Forward in Collaborative Research

Solvathons: a pan-European success story in rare disease diagnosis

Newly accepted Nature Genetics article inspires ERDERA’s plan to scale up cross-border collaborative workshops
Erdera CRN Conference verd 2_page-0002

Shaping the future of global rare disease research: Join the 2nd International Conference on Clinical Research Networks

WODC 1200 x 1200 (Generic)

World Orphan Drug Congress Europe 2025

International Patient Organisation for Primary Immunodeficiencies IPOPI

Patients as equal partners – ERDERA’s vision echoes in Brussels

Erdera CRN Conference verd 2_page-0002

2nd International Conference on Clinical Research Networks

collaborative research abstract watercolor

New toolkit strengthens collaboration between ERNs and industry

Daria Julkowska ERDERA Science Webinar

Scientific Coordinator Daria Julkowska contributes to Science Magazine and Ipsen Foundation’s high-level webinar on rare disease research collaboration 

European Union flag ERDERA

Have your say: EU AI Act consultation on high-risk systems

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