Category: ERDERA

Eighteen international pre clinical therapy projects selected under ERDERA’s first Joint Transnational Call will accelerate treatment options for people living with rare diseases across Europe and beyond
Three days in Brussels help advance the European Declaration on Rare and Complex Diseases
From shared standards to local impact, the 2nd Clinical Research Networks Conference agreed concrete next steps for interoperable clinical research networks worldwide
The next ECRD will take place on 3–4 June 2026 in Prague under the title “Rare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases”.
From 9 to 11 October in Bled, the 15th Balkan Congress and 3rd Alpe Adria Meeting put rare disease diagnostics and predictive genomics centre stage.
Inviting views on how a stronger EU disability strategy up to 2030 can support inclusive research, data sharing and innovation.
The European Conference on Rare Diseases & Orphan Products (ECRD) is the largest patient-led policy-shaping event on rare diseases in Europe.
A global movement, coordinated by EURORDIS in partnership with 72 national alliances, amplifying representation and accelerate fair access to diagnosis, care and research.