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About
About ERDERA
Rare Disease Dashboard
Beneficiaries and Participants
Structure and Governance
Team
Privacy Policy
Living with rare
Research Services
ERDERA Funding
Clinical Research
Data Hub
Expertise services
Erdera accelerator
Training and education
International Alignment
Latest
Resources
RD Virtual Platform
ERN consented forms
Contact Us
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International Alignment
Patient Involvement (PPIE)
“ERDERA could become a model of how to align large-scale, cross-border research with real patient needs, so that the knowledge gained is translated into tangible benefits”
July 9, 2025
Erdera interviews Tomasz Grybek, patient representative and caregiver
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About
About ERDERA
Rare Disease Dashboard
Beneficiaries and Participants
Structure and Governance
Team
Privacy Policy
Living with rare
Research Services
ERDERA Funding
Clinical Research
Data Hub
Expertise services
Erdera accelerator
Training and education
International Alignment
Latest
Resources
RD Virtual Platform
ERN consented forms
Contact Us