On 27–28 March, ERDERA will participate in the 5th International Conference on Rare Diseases, held in Athens, Greece. ERDERA’s Scientific Coordinator, Daria Julkowska, will be among the esteemed speakers at this event, organised by Rare Diseases Greece (RDG), EURORDIS-Rare Diseases Europe, and Boussias Events, with the support of ERDERA. This conference will focus on the theme: “Sustainability in Action: Rethinking the Rare Disease Paradigm from Prevention to HTA and Access.”
With over 300 million people worldwide affected by a rare disease, the community continues to face significant challenges such as delayed diagnoses, fragmented care pathways, and restricted access to life-saving treatments. Underscoring the pressing need for actionable solutions at scale, the theme of this year’s conference expects to strengthen prevention efforts, refining health technology assessments (HTAs), and ensure equitable access to therapies.
The conference will provide a global platform for discussion and cooperation among key stakeholders, including experts from academia, healthcare, industry, policy-making, and patient advocacy. The discussions will focus on innovative approaches to creating a sustainable and equitable healthcare ecosystem for individuals impacted by rare diseases and their communities.
Event details
- Thursday, 27th March 2025: Technopolis City of Athens – Gasholder 1, Auditorium “Miltiadis Evert” & Live Online
- Friday, 28th March 2025: Live Online
To view the full programme and register for the event, visit: https://www.rarediseases-conference.com/
