Category: Data Hub

World Orphan Drug Congress

ERDERA, RealiseD and INVENTS to lead workshop at WODC Europe 2025

Less than a month to the World Orphan Drug Congress Europe.
Rare disease experts to gather in Warsaw to shape Europe’s future strategy

Triplet repeat expansion project sets benchmark for public-private collaboration

ERDERA group photo from the workshop

Multi stakeholder workshop advances prioritisation of rare diseases for ATMP development

A practical framework in the making
Rare Disease Day ERDERA Charts the Path Forward in Collaborative Research

Solvathons: a pan-European success story in rare disease diagnosis

Newly accepted Nature Genetics article inspires ERDERA’s plan to scale up cross-border collaborative workshops
Ronald Cornet

“Data is the fuel of ERDERA’s mission to enhance our insights in rare diseases, to expedite diagnosis, and to find new treatments”

ERDERA interviews Ronald Cornet
Fair-Training-Program-2025-

FAIR Training Program 2025 – 2027 Part 1 opens registration

ERDERA new SOP Rare Diseases

New SOP to enhance transparency and quality of Real-World Data

European Union flag ERDERA

Have your say: EU AI Act consultation on high-risk systems

“I hope ERDERA solidifies the mindset that no single group—be it clinicians, patients, researchers, public authorities, or private entities—can succeed alone” Alexandre Mejat

“I hope ERDERA solidifies the mindset that no single group—be it clinicians, patients, researchers, public authorities, or private entities—can succeed alone”

ERDERA at the Chan Zuckerberg Initiative workshop on systematically characterising rare diseases

ERDERA at the Chan Zuckerberg Initiative workshop on systematically characterising rare diseases

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