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Category: Data Hub

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FAIR Training Program 2025 – 2027 Part 1 opens registration

ERDERA new SOP Rare Diseases

New SOP to enhance transparency and quality of Real-World Data

European Union flag ERDERA

Have your say: EU AI Act consultation on high-risk systems

“I hope ERDERA solidifies the mindset that no single group—be it clinicians, patients, researchers, public authorities, or private entities—can succeed alone” Alexandre Mejat

“I hope ERDERA solidifies the mindset that no single group—be it clinicians, patients, researchers, public authorities, or private entities—can succeed alone”

ERDERA at the Chan Zuckerberg Initiative workshop on systematically characterising rare diseases

ERDERA at the Chan Zuckerberg Initiative workshop on systematically characterising rare diseases

Latest Developments in Good Clinical Practice

EMA Calls for Registrations in Real-World Data Catalogues

EMA Calls for Registrations in Real-World Data Catalogues

Latest developments in good clinical practice: Public consultation on ICH E6(R3) annex 2 and WHO human genome data governance

A New Era in Rare Disease Diagnosis

A new era in rare disease diagnosis: How big data and pan-European collaboration are changing lives

Looking Forward to the 8th RE(ACT) Congress and IRDiRC Conference 2025

Looking forward to the 8th RE(ACT) Congress and IRDiRC Conference 2025

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Training for Resources joining the Rare Diseases Virtual Platform