• Protected: Welcome to the promotional materials page for the 8th RE(ACT) Congress and IRDiRC Conference 2025

    November 29th, 2024

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  • ERDERA Pre-Announces 2025 Joint Transnational Call for Proposals on Rare Disease Therapies

    October 16th, 2024

    The European Rare Diseases Research Alliance (ERDERA) is excited to announce the upcoming launch of its Joint Transnational Call (JTC) for Proposals 2025. Set to officially open on December 10, 2024, this call will invite research teams from across Europe and beyond to submit collaborative projects focused on “Pre-clinical therapy studies for rare diseases using small molecules and biologicals – development and validation”.

  • Call for Nominations: Join the ERDERA Multistakeholder Advisory Board

    September 30th, 2024

    The European Rare Diseases Research Alliance (ERDERA) is excited to announce the call for nominations for its Multistakeholder Advisory Board (MAB). Our mission is to transform the landscape of rare disease research in Europe and improve the lives of over 30 million people living with rare diseases.

  • Join the ERICA ERN Research Conference 2024: Advancing Collaborative Research Across European Reference Networks

    September 19th, 2024

    The ERICA ERN Research Conference will take place from December 11th to December 13th, 2024 in Udine, Italy and will be hosted by MetabERN.

  • Empowering Patient Advocates and Researchers: The EURORDIS Open Academy’s New Era in Rare Disease Training

    September 18th, 2024

    The EURORDIS Open Academy accompanies patient advocates and researchers by offering rare disease-specific comprehensive training programmes that empower them with the knowledge, skills and confidence they need to engage with different stakeholders as equal partners.

  • European partnership opens a new era in Rare Disease Research

    September 16th, 2024

    The European Rare Diseases Research Alliance (ERDERA) kicks off this September, with an estimated budget of 380 million euros and the aim of improving the lives of 30 million rare disease patients in Europe and beyond.