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Join the ERICA ERN Research Conference 2024: Advancing Collaborative Research Across European Reference Networks
September 19th, 2024
The ERICA ERN Research Conference will take place from December 11th to December 13th, 2024 in Udine, Italy and will be hosted by MetabERN.

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Empowering Patient Advocates and Researchers: The EURORDIS Open Academy’s New Era in Rare Disease Training
September 18th, 2024
The EURORDIS Open Academy accompanies patient advocates and researchers by offering rare disease-specific comprehensive training programmes that empower them with the knowledge, skills and confidence they need to engage with different stakeholders as equal partners.

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European partnership opens a new era in Rare Disease Research
September 16th, 2024
The European Rare Diseases Research Alliance (ERDERA) kicks off this September, with an estimated budget of 380 million euros and the aim of improving the lives of 30 million rare disease patients in Europe and beyond.

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ERDERA Launches the 2025 Joint Transnational Call for Proposals on Rare Disease Therapies
December 10th, 2024
The European Rare Diseases Research Alliance (ERDERA) is delighted to announce the official launch of its 2025 Joint Transnational Call (JTC) for Proposals as of today, 10 December 2024. This eagerly anticipated call invites research teams across Europe and internationally to collaborate on cutting-edge projects aimed at “Pre-clinical therapy studies for rare diseases using small molecules and biologicals – development and validation.”

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Join the 2025 Joint Transnational Call Webinar on 17 December
November 29th, 2024
The European Rare Diseases Research Alliance (ERDERA) is delighted to invite researchers, patient advocates, and early career professionals to a key webinar on 17 December 2024, following the official launch of the 2025 Joint Transnational Call for Proposals for “Pre-clinical therapy studies for rare diseases using small molecules and biologicals – development and validation” on 10 December.

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Looking Forward to the 8th RE(ACT) Congress and IRDiRC Conference 2025
November 25th, 2024
From 5–7 March 2025, the global rare disease community will convene for a landmark event: the 8th RE(ACT) Congress & IRDiRC Conference. Taking place in Brussels, this gathering is jointly organised by the BLACKSWAN Foundation and the International Rare Diseases Research Consortium (IRDiRC).

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ERDERA’s Coordinator, Daria Julkowska, Participates in Rare Disease Moonshot Debate Hosted by Euronews
November 14th, 2024
The Innovating for Impact: Shaping the Future of Rare Disease Treatment event, hosted by Euronews and organised by Rare Disease Moonshot, brought together key figures in rare disease advocacy to discuss the future of treatment in Europe.

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ERDERA featured in latest edition of Échos de l’Europe
November 13th, 2024
The European Rare Diseases Research Alliance (ERDERA) has been prominently featured in the recent edition of Échos de l’Europe. This publication explores ERDERA’s, inception, its pillars and roadmap, highlighting collaborative efforts aimed at improving the lives of rare disease patients across Europe.

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ERDERA’s Opening Ceremony Congregates Nearly 600 Participants to Mark the Start of the New Partnership
October 28th, 2024
Nearly 600 people followed ERDERA opening ceremony either online or in person in central Paris on 28 October. We summarise next some highlights from the speakers who took the floor during the event that marked the start of a new era in rare disease research.

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ERDERA Pre-Announces 2025 Joint Transnational Call for Proposals on Rare Disease Therapies
October 16th, 2024
The European Rare Diseases Research Alliance (ERDERA) is excited to announce the upcoming launch of its Joint Transnational Call (JTC) for Proposals 2025. Set to officially open on December 10, 2024, this call will invite research teams from across Europe and beyond to submit collaborative projects focused on “Pre-clinical therapy studies for rare diseases using small molecules and biologicals – development and validation”.

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Be Part of a Major Milestone in Rare Disease Research: Join ERDERA’s Launch Event!
October 15th, 2024
ERDERA was launched in September 2024 with a remarkable budget of 380 million euros, marking a significant commitment from the European Union, Horizon Europe, and member states. Coordinated by the National Institute of Health and Medical Research (INSERM) in France, this ambitious partnership unites over 170 organizations from the public and private sectors to advance rare disease research and innovation.

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ERDERA Scientific Coordinator Daria Julkowska Highlights Goals for Rare Disease Research in Europe
October 10th, 2024
In a recent interview with Science Business, ERDERA Scientific Coordinator Daria Julkowska discussed the upcoming launch of the European Rare Diseases Research Alliance (ERDERA), its mission, and its critical role in advancing rare disease research across Europe.

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Call for Nominations: Join the ERDERA Multistakeholder Advisory Board
September 30th, 2024
The European Rare Diseases Research Alliance (ERDERA) is excited to announce the call for nominations for its Multistakeholder Advisory Board (MAB). Our mission is to transform the landscape of rare disease research in Europe and improve the lives of over 30 million people living with rare diseases.

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Join the ERICA ERN Research Conference 2024: Advancing Collaborative Research Across European Reference Networks
September 19th, 2024
The ERICA ERN Research Conference will take place from December 11th to December 13th, 2024 in Udine, Italy and will be hosted by MetabERN.

Read more
Empowering Patient Advocates and Researchers: The EURORDIS Open Academy’s New Era in Rare Disease Training
September 18th, 2024
The EURORDIS Open Academy accompanies patient advocates and researchers by offering rare disease-specific comprehensive training programmes that empower them with the knowledge, skills and confidence they need to engage with different stakeholders as equal partners.

Read more
European partnership opens a new era in Rare Disease Research
September 16th, 2024
The European Rare Diseases Research Alliance (ERDERA) kicks off this September, with an estimated budget of 380 million euros and the aim of improving the lives of 30 million rare disease patients in Europe and beyond.

Read more

ERDERA Scientific Coordinator Daria Julkowska Highlights Goals for Rare Disease Research in Europe

Oscar2024-12-07T09:25:37+02:00October 10th, 2024|

In a recent interview with Science Business, ERDERA Scientific Coordinator Daria Julkowska discussed the upcoming launch of the European Rare Diseases Research Alliance (ERDERA), its mission, and its critical role in advancing rare disease research across Europe. READ MORE

Call for Nominations: Join the ERDERA Multistakeholder Advisory Board

Albert2024-12-07T09:10:38+02:00September 30th, 2024|

The European Rare Diseases Research Alliance (ERDERA) is excited to announce the call for nominations for its Multistakeholder Advisory Board (MAB). Our mission is to transform the landscape of rare disease research in Europe and improve the lives of over 30 million people living with rare diseases. READ MORE READ MORE

Join the ERICA ERN Research Conference 2024: Advancing Collaborative Research Across European Reference Networks

Albert2024-12-07T09:10:11+02:00September 19th, 2024|

The ERICA ERN Research Conference will take place from December 11th to December 13th, 2024 in Udine, Italy and will be hosted by MetabERN. READ MORE

Empowering Patient Advocates and Researchers: The EURORDIS Open Academy’s New Era in Rare Disease Training

Albert2024-12-07T09:09:27+02:00September 18th, 2024|

The EURORDIS Open Academy accompanies patient advocates and researchers by offering rare disease-specific comprehensive training programmes that empower them with the knowledge, skills and confidence they need to engage with different stakeholders as equal partners. READ MORE

European partnership opens a new era in Rare Disease Research

Albert2024-12-07T09:08:51+02:00September 16th, 2024|

The European Rare Diseases Research Alliance (ERDERA) kicks off this September, with an estimated budget of 380 million euros and the aim of improving the lives of 30 million rare disease patients in Europe and beyond. READ MORE