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ERDERA’s Coordinator, Daria Julkowska, Participates in Rare Disease Moonshot Debate Hosted by Euronews
November 14th, 2024
The Innovating for Impact: Shaping the Future of Rare Disease Treatment event, hosted by Euronews and organised by Rare Disease Moonshot, brought together key figures in rare disease advocacy to discuss the future of treatment in Europe. Moderated by Gerardo […]

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Be Part of a Major Milestone in Rare Disease Research: Join ERDERA’s Launch Event!
October 15th, 2024
ERDERA was launched in September 2024 with a remarkable budget of 380 million euros, marking a significant commitment from the European Union, Horizon Europe, and member states. Coordinated by the National Institute of Health and Medical Research (INSERM) in France, […]

Read more
ERDERA Scientific Coordinator Daria Julkowska Highlights Goals for Rare Disease Research in Europe
October 10th, 2024
In a recent interview with Science Business, ERDERA Scientific Coordinator Daria Julkowska discussed the upcoming launch of the European Rare Diseases Research Alliance (ERDERA), its mission, and its critical role in advancing rare disease research across Europe. This partnership, funded under Horizon Europe, is […]

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ERDERA’s Coordinator, Daria Julkowska, Participates in Rare Disease Moonshot Debate Hosted by Euronews
November 14th, 2024
The Innovating for Impact: Shaping the Future of Rare Disease Treatment event, hosted by Euronews and organised by Rare Disease Moonshot, brought together key figures in rare disease advocacy to discuss the future of treatment in Europe. Moderated by Gerardo […]

Read more
ERDERA featured in latest edition of Échos de l’Europe
November 13th, 2024
The European Rare Diseases Research Alliance (ERDERA) has been prominently featured in the recent edition of Échos de l’Europe. This publication explores ERDERA’s, inception, its pillars and roadmap, highlighting collaborative efforts aimed at improving the lives of rare disease patients […]

Read more
ERDERA’s Opening Ceremony Congregates Nearly 600 Participants to Mark the Start of the New Partnership
October 28th, 2024
Nearly 600 people followed ERDERA opening ceremony either online or in person in central Paris on 28 October. We summarise next some highlights from the speakers who took the floor during the event that marked the start of a new […]

Read more
ERDERA Pre-Announces 2025 Joint Transnational Call for Proposals on Rare Disease Therapies
October 16th, 2024
The European Rare Diseases Research Alliance (ERDERA) is excited to announce the upcoming launch of its Joint Transnational Call (JTC) for Proposals 2025. Set to officially open on December 10, 2024, this call will invite research teams from across Europe […]

Read more
Be Part of a Major Milestone in Rare Disease Research: Join ERDERA’s Launch Event!
October 15th, 2024
ERDERA was launched in September 2024 with a remarkable budget of 380 million euros, marking a significant commitment from the European Union, Horizon Europe, and member states. Coordinated by the National Institute of Health and Medical Research (INSERM) in France, […]

Read more
ERDERA Scientific Coordinator Daria Julkowska Highlights Goals for Rare Disease Research in Europe
October 10th, 2024
In a recent interview with Science Business, ERDERA Scientific Coordinator Daria Julkowska discussed the upcoming launch of the European Rare Diseases Research Alliance (ERDERA), its mission, and its critical role in advancing rare disease research across Europe. This partnership, funded under Horizon Europe, is […]

Read more
Call for Nominations: Join the ERDERA Multistakeholder Advisory Board
September 30th, 2024
The European Rare Diseases Research Alliance (ERDERA) is excited to announce the call for nominations for its Multistakeholder Advisory Board (MAB). Our mission is to transform the landscape of rare disease research in Europe and improve the lives of over […]

Read more
Join the ERICA ERN Research Conference 2024: Advancing Collaborative Research Across European Reference Networks
September 19th, 2024
The ERICA ERN Research Conference will take place from December 11th to December 13th, 2024 in Udine, Italy and will be hosted by MetabERN. The aim of the ERICA consortium, in which all 24 European Reference Networks (ERNs) take part, […]

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Empowering Patient Advocates and Researchers: The EURORDIS Open Academy’s New Era in Rare Disease Training
September 18th, 2024
The EURORDIS Open Academy accompanies patient advocates and researchers by offering rare disease-specific comprehensive training programmes that empower them with the knowledge, skills and confidence they need to engage with different stakeholders as equal partners. Since 2008, EURORDIS has been providing training programmes […]

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European partnership opens a new era in Rare Disease Research
September 16th, 2024
The European Rare Diseases Research Alliance (ERDERA) kicks off this September, with an estimated budget of 380 million euros and the aim of improving the lives of 30 million rare disease patients in Europe and beyond. The new partnership, championed […]

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ERDERA’s Coordinator, Daria Julkowska, Participates in Rare Disease Moonshot Debate Hosted by Euronews

Oscar2024-11-20T18:07:19+02:00November 14th, 2024|

The Innovating for Impact: Shaping the Future of Rare Disease Treatment event, hosted by Euronews and organised by Rare Disease Moonshot, brought together key figures in rare disease advocacy to discuss the future of treatment in Europe. Moderated by Gerardo Fortuna, EU policy reporter for Euronews, the panel included Vlad Voiculescu (MEP, Renew Europe, European READ MORE

ERDERA featured in latest edition of Échos de l’Europe

Freya2024-11-14T14:58:04+02:00November 13th, 2024|

The European Rare Diseases Research Alliance (ERDERA) has been prominently featured in the recent edition of Échos de l'Europe. This publication explores ERDERA’s, inception, its pillars and roadmap, highlighting collaborative efforts aimed at improving the lives of rare disease patients across Europe. It includes an editorial by Elli Chatzopoulou, and interviews with ERDERA's scientific coordinator READ MORE

ERDERA’s Opening Ceremony Congregates Nearly 600 Participants to Mark the Start of the New Partnership

gisela2024-10-29T00:06:57+02:00October 28th, 2024|

Nearly 600 people followed ERDERA opening ceremony either online or in person in central Paris on 28 October. We summarise next some highlights from the speakers who took the floor during the event that marked the start of a new era in rare disease research. Nacer Boubena Nacer Boubena, Scientific Director, Head READ MORE

ERDERA Pre-Announces 2025 Joint Transnational Call for Proposals on Rare Disease Therapies

Albert2024-11-12T18:02:59+02:00October 16th, 2024|

The European Rare Diseases Research Alliance (ERDERA) is excited to announce the upcoming launch of its Joint Transnational Call (JTC) for Proposals 2025. Set to officially open on December 10, 2024, this call will invite research teams from across Europe and beyond to submit collaborative projects focused on “Pre-clinical therapy studies for rare diseases using READ MORE

Be Part of a Major Milestone in Rare Disease Research: Join ERDERA’s Launch Event!

Oscar2024-10-25T12:12:13+02:00October 15th, 2024|

ERDERA was launched in September 2024 with a remarkable budget of 380 million euros, marking a significant commitment from the European Union, Horizon Europe, and member states. Coordinated by the National Institute of Health and Medical Research (INSERM) in France, this ambitious partnership unites over 170 organizations from the public and private sectors to advance READ MORE

ERDERA Scientific Coordinator Daria Julkowska Highlights Goals for Rare Disease Research in Europe

Oscar2024-10-11T07:57:33+02:00October 10th, 2024|

In a recent interview with Science Business, ERDERA Scientific Coordinator Daria Julkowska discussed the upcoming launch of the European Rare Diseases Research Alliance (ERDERA), its mission, and its critical role in advancing rare disease research across Europe. This partnership, funded under Horizon Europe, is set to revolutionize the field of rare diseases with a seven-year budget of €380 million. The READ MORE

Call for Nominations: Join the ERDERA Multistakeholder Advisory Board

Albert2024-10-23T19:56:57+02:00September 30th, 2024|

The European Rare Diseases Research Alliance (ERDERA) is excited to announce the call for nominations for its Multistakeholder Advisory Board (MAB). Our mission is to transform the landscape of rare disease research in Europe and improve the lives of over 30 million people living with rare diseases. By supporting innovative research, developing new diagnostic methods, READ MORE

Join the ERICA ERN Research Conference 2024: Advancing Collaborative Research Across European Reference Networks

Albert2024-10-11T11:32:26+02:00September 19th, 2024|

The ERICA ERN Research Conference will take place from December 11th to December 13th, 2024 in Udine, Italy and will be hosted by MetabERN. The aim of the ERICA consortium, in which all 24 European Reference Networks (ERNs) take part, is to build on the strength of the individual ERNs and create a platform that READ MORE