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Be Part of a Major Milestone in Rare Disease Research: Join ERDERA’s Launch Event!
October 15th, 2024
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ERDERA Scientific Coordinator Daria Julkowska Highlights Goals for Rare Disease Research in Europe
October 10th, 2024
In a recent interview with Science Business, ERDERA Scientific Coordinator Daria Julkowska discussed the upcoming launch of the European Rare Diseases Research Alliance (ERDERA), its mission, and its critical role in advancing rare disease research across Europe. This partnership, funded under Horizon Europe, is set to revolutionize the field of rare diseases with a seven-year budget of €380 million. The […]

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Be Part of a Major Milestone in Rare Disease Research: Join ERDERA’s Launch Event!

Oscar2024-10-15T18:20:31+02:00October 15th, 2024|

ERDERA was launched in September 2024 with a remarkable budget of 380 million euros, marking a significant commitment from the European Union, Horizon Europe, and member states. Coordinated by the National Institute of Health and Medical Research (INSERM) in France, this ambitious partnership unites over 170 organizations from the public and private sectors to READ MORE

ERDERA Scientific Coordinator Daria Julkowska Highlights Goals for Rare Disease Research in Europe

Oscar2024-10-11T07:57:33+02:00October 10th, 2024|

In a recent interview with Science Business, ERDERA Scientific Coordinator Daria Julkowska discussed the upcoming launch of the European Rare Diseases Research Alliance (ERDERA), its mission, and its critical role in advancing rare disease research across Europe. This partnership, funded under Horizon Europe, is set to revolutionize the field of rare diseases with a seven-year budget of €380 million. The READ MORE

Call for Nominations: Join the ERDERA Multistakeholder Advisory Board

Yonca2024-10-14T15:44:00+02:00September 30th, 2024|

The European Rare Diseases Research Alliance (ERDERA) is excited to announce the call for nominations for its Multistakeholder Advisory Board (MAB). Our mission is to transform the landscape of rare disease research in Europe and improve the lives of over 30 million people living with rare diseases. By supporting innovative research, developing new diagnostic methods, READ MORE

Join the ERICA ERN Research Conference 2024: Advancing Collaborative Research Across European Reference Networks

Yonca2024-10-11T11:32:26+02:00September 19th, 2024|

The ERICA ERN Research Conference will take place from December 11th to December 13th, 2024 in Udine, Italy and will be hosted by MetabERN. The aim of the ERICA consortium, in which all 24 European Reference Networks (ERNs) take part, is to build on the strength of the individual ERNs and create a platform that READ MORE

Empowering Patient Advocates and Researchers: The EURORDIS Open Academy’s New Era in Rare Disease Training

Yonca2024-10-11T18:50:00+02:00September 18th, 2024|

The EURORDIS Open Academy accompanies patient advocates and researchers by offering rare disease-specific comprehensive training programmes that empower them with the knowledge, skills and confidence they need to engage with different stakeholders as equal partners. Since 2008, EURORDIS has been providing training programmes aimed at empowering patients and researchers to ensure they have the confidence and knowledge needed READ MORE

European partnership opens a new era in Rare Disease Research

Albert Martrat2024-10-11T16:47:35+02:00September 16th, 2024|

The European Rare Diseases Research Alliance (ERDERA) kicks off this September, with an estimated budget of 380 million euros and the aim of improving the lives of 30 million rare disease patients in Europe and beyond. The new partnership, championed by the European Union under Horizon Europe and Members States, is led by the National READ MORE