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ERDERA’s Opening Ceremony Congregates Nearly 600 Participants to Mark the Start of the New Partnership
October 28th, 2024
Nearly 600 people followed ERDERA opening ceremony either online or in person in central Paris on 28 October. We summarise next some highlights from the speakers who took the floor during the event that marked the start of a new era in rare disease research.

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The Online Submission Platform for ERDERA’s Joint Transnational Call 2025 is Now Live
January 21st, 2025
We are pleased to announce that the platform for submitting project applications for the Joint Transnational Call for Proposals (JTC) 2025 is now officially live. This highly anticipated call invites research teams across Europe and internationally to collaborate on cutting-edge projects aimed at “Pre-clinical therapy studies for rare diseases using small molecules and biologicals – development and validation.”

Read more
A New Era in Rare Disease Diagnosis: How Big Data and Pan-European Collaboration are Changing Lives
January 20th, 2025
For decades, rare disease patients and their families have endured a painful “diagnostic odyssey,” bouncing between specialists and often going years without answers. Rare diseases, by definition, affect fewer than 5 in 10,000 people in the European Union, but with over 7,000 such conditions cataloged, their collective impact is profound. A staggering 70% of these diseases are genetic, yet pinpointing the precise DNA mutation responsible has often been a Herculean task. Now, thanks to an unprecedented pan-European collaboration and advances in big data analysis, hope is on the horizon for those with previously unsolved rare diseases.

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Slovenia Joins ERDERA’s Joint Transnational Call for Proposals on Rare Disease Therapies
January 16th, 2025
We are delighted to announce that the Ministry of Health of the Republic of Slovenia (Ministrstvo za zdravje) has officially joined the funding organisations participating in the first Joint Transnational Call for Proposals on Rare Disease Therapies. This initiative is part of ERDERA’s ongoing commitment to advancing cutting-edge research in this critical area.

Read more
Join ERDERA’s Extended Webinar on the Joint Transnational Call on 14 January
January 8th, 2025
Following the success of our previous session, ERDERA warmly invites researchers, patient advocates, and early-career professionals to an extended webinar on 14 January 2025. This webinar is part of the 2025 Joint Transnational Call for Proposals, “Pre-clinical therapy studies for rare diseases using small molecules and biologicals – development and validation”, which was officially launched on 10 December 2024.

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ERDERA Launches the 2025 Joint Transnational Call for Proposals on Rare Disease Therapies
December 10th, 2024
The European Rare Diseases Research Alliance (ERDERA) is delighted to announce the official launch of its 2025 Joint Transnational Call (JTC) for Proposals as of today, 10 December 2024. This eagerly anticipated call invites research teams across Europe and internationally to collaborate on cutting-edge projects aimed at “Pre-clinical therapy studies for rare diseases using small molecules and biologicals – development and validation.”

Read more
Join the 2025 Joint Transnational Call Webinar on 17 December
November 29th, 2024
The European Rare Diseases Research Alliance (ERDERA) is delighted to invite researchers, patient advocates, and early career professionals to a key webinar on 17 December 2024, following the official launch of the 2025 Joint Transnational Call for Proposals for “Pre-clinical therapy studies for rare diseases using small molecules and biologicals – development and validation” on 10 December.

Read more
Looking Forward to the 8th RE(ACT) Congress and IRDiRC Conference 2025
November 25th, 2024
From 5–7 March 2025, the global rare disease community will convene for a landmark event: the 8th RE(ACT) Congress & IRDiRC Conference. Taking place in Brussels, this gathering is jointly organised by the BLACKSWAN Foundation and the International Rare Diseases Research Consortium (IRDiRC).

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ERDERA’s Coordinator, Daria Julkowska, Participates in Rare Disease Moonshot Debate Hosted by Euronews
November 14th, 2024
The Innovating for Impact: Shaping the Future of Rare Disease Treatment event, hosted by Euronews and organised by Rare Disease Moonshot, brought together key figures in rare disease advocacy to discuss the future of treatment in Europe.

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ERDERA featured in latest edition of Échos de l’Europe
November 13th, 2024
The European Rare Diseases Research Alliance (ERDERA) has been prominently featured in the recent edition of Échos de l’Europe. This publication explores ERDERA’s, inception, its pillars and roadmap, highlighting collaborative efforts aimed at improving the lives of rare disease patients across Europe.

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ERDERA’s Opening Ceremony Congregates Nearly 600 Participants to Mark the Start of the New Partnership
October 28th, 2024
Nearly 600 people followed ERDERA opening ceremony either online or in person in central Paris on 28 October. We summarise next some highlights from the speakers who took the floor during the event that marked the start of a new era in rare disease research.

Read more
ERDERA Pre-Announces 2025 Joint Transnational Call for Proposals on Rare Disease Therapies
October 16th, 2024
The European Rare Diseases Research Alliance (ERDERA) is excited to announce the upcoming launch of its Joint Transnational Call (JTC) for Proposals 2025. Set to officially open on December 10, 2024, this call will invite research teams from across Europe and beyond to submit collaborative projects focused on “Pre-clinical therapy studies for rare diseases using small molecules and biologicals – development and validation”.

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Be Part of a Major Milestone in Rare Disease Research: Join ERDERA’s Launch Event!
October 15th, 2024
ERDERA was launched in September 2024 with a remarkable budget of 380 million euros, marking a significant commitment from the European Union, Horizon Europe, and member states. Coordinated by the National Institute of Health and Medical Research (INSERM) in France, this ambitious partnership unites over 170 organizations from the public and private sectors to advance rare disease research and innovation.

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ERDERA Scientific Coordinator Daria Julkowska Highlights Goals for Rare Disease Research in Europe
October 10th, 2024
In a recent interview with Science Business, ERDERA Scientific Coordinator Daria Julkowska discussed the upcoming launch of the European Rare Diseases Research Alliance (ERDERA), its mission, and its critical role in advancing rare disease research across Europe.

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Call for Nominations: Join the ERDERA Multistakeholder Advisory Board
September 30th, 2024
The European Rare Diseases Research Alliance (ERDERA) is excited to announce the call for nominations for its Multistakeholder Advisory Board (MAB). Our mission is to transform the landscape of rare disease research in Europe and improve the lives of over 30 million people living with rare diseases.

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Join the ERICA ERN Research Conference 2024: Advancing Collaborative Research Across European Reference Networks
September 19th, 2024
The ERICA ERN Research Conference will take place from December 11th to December 13th, 2024 in Udine, Italy and will be hosted by MetabERN.

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Empowering Patient Advocates and Researchers: The EURORDIS Open Academy’s New Era in Rare Disease Training
September 18th, 2024
The EURORDIS Open Academy accompanies patient advocates and researchers by offering rare disease-specific comprehensive training programmes that empower them with the knowledge, skills and confidence they need to engage with different stakeholders as equal partners.

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European partnership opens a new era in Rare Disease Research
September 16th, 2024
The European Rare Diseases Research Alliance (ERDERA) kicks off this September, with an estimated budget of 380 million euros and the aim of improving the lives of 30 million rare disease patients in Europe and beyond.

Read more

The Online Submission Platform for ERDERA’s Joint Transnational Call 2025 is Now Live

Freya2025-01-21T13:17:03+02:00January 21st, 2025|

We are pleased to announce that the platform for submitting project applications for the Joint Transnational Call for Proposals (JTC) 2025 is now officially live. This highly anticipated call invites research teams across Europe and internationally to collaborate on cutting-edge projects aimed at “Pre-clinical therapy studies for rare diseases using small molecules and biologicals – READ MORE

A New Era in Rare Disease Diagnosis: How Big Data and Pan-European Collaboration are Changing Lives

Freya2025-01-20T15:25:44+02:00January 20th, 2025|

For decades, rare disease patients and their families have endured a painful “diagnostic odyssey,” bouncing between specialists and often going years without answers. Rare diseases, by definition, affect fewer than 5 in 10,000 people in the European Union, but with over 7,000 such conditions cataloged, their collective impact is profound. A staggering 70% of these READ MORE

Slovenia Joins ERDERA’s Joint Transnational Call for Proposals on Rare Disease Therapies

Freya2025-01-16T16:10:30+02:00January 16th, 2025|

We are delighted to announce that the Ministry of Health of the Republic of Slovenia (Ministrstvo za zdravje) has officially joined the funding organisations participating in the first Joint Transnational Call for Proposals on Rare Disease Therapies. This initiative is part of ERDERA’s ongoing commitment to advancing cutting-edge research in this critical area. READ MORE

Join ERDERA’s Extended Webinar on the Joint Transnational Call on 14 January

Freya2025-01-13T11:44:46+02:00January 8th, 2025|

Following the success of our previous session, ERDERA warmly invites researchers, patient advocates, and early-career professionals to an extended webinar on 14 January 2025. This webinar is part of the 2025 Joint Transnational Call for Proposals, “Pre-clinical therapy studies for rare diseases using small molecules and biologicals – development and validation”, which was officially launched on READ MORE

ERDERA Launches the 2025 Joint Transnational Call for Proposals on Rare Disease Therapies

Freya2024-12-10T14:54:07+02:00December 10th, 2024|

The European Rare Diseases Research Alliance (ERDERA) is delighted to announce the official launch of its 2025 Joint Transnational Call (JTC) for Proposals as of today, 10 December 2024. This eagerly anticipated call invites research teams across Europe and internationally to collaborate on cutting-edge projects aimed at “Pre-clinical therapy studies for rare diseases using small READ MORE

Join the 2025 Joint Transnational Call Webinar on 17 December

Freya2024-12-07T09:15:23+02:00November 29th, 2024|

The European Rare Diseases Research Alliance (ERDERA) is delighted to invite researchers, patient advocates, and early career professionals to a key webinar on 17 December 2024, following the official launch of the 2025 Joint Transnational Call for Proposals for “Pre-clinical therapy studies for rare diseases using small molecules and biologicals – development and validation” on READ MORE

Looking Forward to the 8th RE(ACT) Congress and IRDiRC Conference 2025

Freya2024-12-07T09:14:53+02:00November 25th, 2024|

From 5–7 March 2025, the global rare disease community will convene for a landmark event: the 8th RE(ACT) Congress & IRDiRC Conference. Taking place in Brussels, this gathering is jointly organised by the BLACKSWAN Foundation and the International Rare Diseases Research Consortium (IRDiRC). READ MORE

ERDERA’s Coordinator, Daria Julkowska, Participates in Rare Disease Moonshot Debate Hosted by Euronews

Oscar2024-12-07T09:26:48+02:00November 14th, 2024|

The Innovating for Impact: Shaping the Future of Rare Disease Treatment event, hosted by Euronews and organised by Rare Disease Moonshot, brought together key figures in rare disease advocacy to discuss the future of treatment in Europe. READ MORE

gisela.pairo

ERDERA’s Opening Ceremony Congregates Nearly 600 Participants to Mark the Start of the New Partnership

Contact us

Latest News

The Online Submission Platform for ERDERA’s Joint Transnational Call 2025 is Now Live

A New Era in Rare Disease Diagnosis: How Big Data and Pan-European Collaboration are Changing Lives

Slovenia Joins ERDERA’s Joint Transnational Call for Proposals on Rare Disease Therapies

Join ERDERA’s Extended Webinar on the Joint Transnational Call on 14 January

ERDERA Launches the 2025 Joint Transnational Call for Proposals on Rare Disease Therapies

Join the 2025 Joint Transnational Call Webinar on 17 December

Looking Forward to the 8th RE(ACT) Congress and IRDiRC Conference 2025

ERDERA’s Coordinator, Daria Julkowska, Participates in Rare Disease Moonshot Debate Hosted by Euronews

ERDERA featured in latest edition of Échos de l’Europe

ERDERA’s Opening Ceremony Congregates Nearly 600 Participants to Mark the Start of the New Partnership

ERDERA Pre-Announces 2025 Joint Transnational Call for Proposals on Rare Disease Therapies

Be Part of a Major Milestone in Rare Disease Research: Join ERDERA’s Launch Event!

ERDERA Scientific Coordinator Daria Julkowska Highlights Goals for Rare Disease Research in Europe

Call for Nominations: Join the ERDERA Multistakeholder Advisory Board

Join the ERICA ERN Research Conference 2024: Advancing Collaborative Research Across European Reference Networks

Empowering Patient Advocates and Researchers: The EURORDIS Open Academy’s New Era in Rare Disease Training

European partnership opens a new era in Rare Disease Research