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X-WR-CALDESC:Events for ERDERA
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DTSTART;TZID=UTC:20260302T080000
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DTSTAMP:20260611T094505
CREATED:20260109T093930Z
LAST-MODIFIED:20260109T101452Z
UID:10000029-1772438400-1782925200@erdera.org
SUMMARY:Data\, ethics and AI training for rare disease advocates
DESCRIPTION:The second edition of the Data\, Ethics and AI training is here! Developed under ERDERA – the European Rare Diseases Research Alliance\, this second edition responds to the growing need for patient advocates to understand data management\, ethical considerations and the role of AI in rare disease research\, and to engage meaningfully with researchers and decision-makers. \nThis hybrid programme will combine online training from March to July 2026 (6–8 hours spread over 5 months) and iIn-person sessions on 14–15 September 2026 in Barcelona. \nApplications close 2 February 2026. \nLearn more & apply here.
URL:https://erdera.org/event/data-ethics-and-ai-training-for-rare-disease-advocates/
CATEGORIES:Patient Involvement (PPIE),Training & Education
ATTACH;FMTTYPE=image/jpeg:https://erdera.org/wp-content/uploads/2026/01/1767801707477-1-e1767955392719.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260609
DTEND;VALUE=DATE:20260623
DTSTAMP:20260611T094505
CREATED:20251205T122503Z
LAST-MODIFIED:20260116T075546Z
UID:10000028-1780963200-1782172799@erdera.org
SUMMARY:World Orphan Drug Congress USA 2026
DESCRIPTION:The World Orphan Drug Congress USA 2026 is presented by Terrapinn as a major global meeting point for the rare disease and orphan drug community\, bringing together more than 2 000 participants from over 50 countries in Boston on 9–11 June 2026. Over three days\, the congress combines plenary sessions\, focused thematic streams and pre‑conference workshops that cover patient data\, next generation therapies\, clinical development and regulation\, pricing and reimbursement\, AI and digital health\, diagnosis and drug discovery\, early access programmes and real‑world evidence. The programme features . \nAlongside the scientific and policy content\, the event places strong emphasis on networking and partnership building through panel discussions\, roundtables\, exhibition space\, one‑to‑one partnering meetings and a start‑up and innovation showcase. Patient advocates\, hospital and healthcare professionals\, European Reference Networks and investors are actively encouraged to take part\, with a limited number of complimentary VIP passes and opportunities for poster presentations on the expo floor. For ERDERA\, this congress offers a platform to strengthen international alignment\, clinical research collaboration and data‑driven innovation with global partners working on rare diseases and orphan drugs.
URL:https://erdera.org/event/world-orphan-drug-congress-usa-2026/
LOCATION:Boston Convention and Exhibition Center\, Boston\, MA\, Boston\, MA\, United States
CATEGORIES:Accelerator,Clinical Research,Data Hub,Expertise Services,International Alignment,Patient Involvement (PPIE)
ATTACH;FMTTYPE=image/jpeg:https://erdera.org/wp-content/uploads/2025/12/1656-world-orphan-drug-congress-usa-2026_pages-to-jpg-0001.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260616
DTEND;VALUE=DATE:20260618
DTSTAMP:20260611T094505
CREATED:20260309T095519Z
LAST-MODIFIED:20260408T102426Z
UID:10000030-1781568000-1781740799@erdera.org
SUMMARY:Advancement of Treatments for Rare Diseases
DESCRIPTION:The Cyprus Institute of Neurology & Genetics and the Deputy Ministry of Research\, Innovation and Digital Policy\, are organising the conference “Advancement of Treatments for Rare Diseases” on 16-17 June 2026\, at the Amphitheater\, The Cyprus Institute of Neurology & Genetics Nicosia\, Cyprus. \n\nRare Diseases affect approximately 30 million people across the European Union and present unique challenges due to their complexity\, rarity\, and limited treatment options. Advancing research\, improving access to innovative therapies\, and strengthening collaboration across Europe are essential to improving outcomes for patients and their families. \nThe Conference will feature the following key themes: \n\nStrengthening EU Collaboration for Rare Diseases\nAdvancing Research\, Innovation & Therapeutic Development\nImproving Regulatory Frameworks for Orphan Drugs\nEnsuring Accessibility\, Equity & Patient-Centred Care\nEnhancing Data Infrastructure\, Security & Digital Innovation\n\nThe target audience includes government ministries and public authorities; healthcare providers and clinical experts; researchers and the scientific community; representatives from the pharmaceutical and biotechnology industry; patient organisations and advocacy groups; data\, digital health\, and technology specialists; health economics\, ethics\, and legal experts; European funding bodies and research agencies; NGOs; and other high-level multi-stakeholder representatives. \nThe two-day event will highlight the EU’s ambition to make Europe a global leader in life sciences by 2030 and will focus on translating research and policy initiatives into tangible benefits for Rare Disease patients through better prevention\, diagnosis\, and treatment.
URL:https://erdera.org/event/advancement-of-treatments-for-rare-diseases/
LOCATION:Cyprus Institute of Neurology and Genetics\, Iroon Avenue 6\, Agios Dometios\, Nicosia\, 2371\, Cyprus
CATEGORIES:Clinical Research,Data Hub,ERDERA,Expertise Services,Funding,International Alignment,Patient Involvement (PPIE)
ATTACH;FMTTYPE=image/png:https://erdera.org/wp-content/uploads/2026/01/Captura-de-pantalla-2026-04-08-142004.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Berlin:20260706T150000
DTEND;TZID=Europe/Berlin:20260706T170000
DTSTAMP:20260611T094505
CREATED:20260603T085817Z
LAST-MODIFIED:20260603T091147Z
UID:10000043-1783350000-1783357200@erdera.org
SUMMARY:ERDERA Clinical Trial Call 2026 - Information Webinar
DESCRIPTION:ERDERA will launch its Clinical Trial Call 2026 (ECTC) on 1 July 2026\, which will support multinational\, GCP‑compliant early‑phase interventional clinical trials in the field of rare diseases. This call represents a key opportunity to advance collaborative research efforts and accelerate the development of innovative therapeutic approaches for patients affected by rare conditions. \n\nTo provide further information and guidance on the call\, ERDERA will host an informational webinar on 6 July 2026\, from 15:00 to 17:00. During this session\, participants will have the opportunity to hear directly from ERDERA experts\, who will present the objectives\, scope\, and requirements of the call\, and address questions from prospective applicants.
URL:https://erdera.org/event/erdera-clinical-trial-call-2026-information-webinar/
CATEGORIES:Funding
ATTACH;FMTTYPE=image/png:https://erdera.org/wp-content/uploads/2026/06/ERDERA-JTC-2026-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261026
DTEND;VALUE=DATE:20261029
DTSTAMP:20260611T094505
CREATED:20260226T123002Z
LAST-MODIFIED:20260226T124050Z
UID:10000041-1792972800-1793231999@erdera.org
SUMMARY:World Orphan Drug Congress Europe 2026
DESCRIPTION:The World Orphan Drug Congress is the largest orphan drug & rare disease meeting of its kind across the globe. From cell and gene therapy\, genetic testing\, and market access\, to real world evidence\, this one meeting covers the whole orphan drugs value chain where science\, government and manufacturers all come together to create groundbreaking progress. \n\n26th October 2026 | Pre-Congress Workshops\n27th – 28th  October 2026 | Main Congress Days\nLocation: RAI Congress Centre\, Amsterdam
URL:https://erdera.org/event/world-orphan-drug-congress-europe-2026/
CATEGORIES:ERDERA
ATTACH;FMTTYPE=image/jpeg:https://erdera.org/wp-content/uploads/2026/02/1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20270310
DTEND;VALUE=DATE:20270313
DTSTAMP:20260611T094505
CREATED:20260226T091359Z
LAST-MODIFIED:20260519T121432Z
UID:10000040-1804636800-1804895999@erdera.org
SUMMARY:RE(ACT) Congress 2027
DESCRIPTION:Building on the legacy of the RE(ACT) Congress series (now reaching its ninth edition)\, RE(ACT) continues to serve as a meeting point for scientific innovation and real-world impact. The Congress brings together international leaders\, renowned experts\, and emerging talents from across disciplines to share breakthrough results\, challenge ideas\, and help shape the research and policy landscape that will accelerate progress in rare diseases. \nOrganised by the European Rare Diseases Research Alliance (ERDERA)\, the International Rare Diseases Research Consortium (IRDiRC)\, and BLACKSWAN Foundation\, the RE(ACT) Congress embodies a shared commitment to overcoming rare disease challenges through collective action\, open collaboration\, and knowledge-sharing. \n 
URL:https://erdera.org/event/react-congress-2027/
CATEGORIES:ERDERA
ATTACH;FMTTYPE=image/png:https://erdera.org/wp-content/uploads/2026/02/Captura-de-pantalla-2026-02-26-110930.png
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