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DTSTART;TZID=Europe/Berlin:20260925T130000
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DTSTAMP:20260917T151809Z
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UID:10000049-1790341200-1790344800@erdera.org
SUMMARY:Diagnostic Research Workstream – Session 2: Data Sharing\, Data Management & Ethics
DESCRIPTION:This webinar gives an overview of the ERDERA Diagnostic Research Workstream’s data sharing framework\, covering the Data Sharing Framework Agreement\, ethical/governance requirements\, and the data submission process via GPAP/Phenostore and RD3. Intended for researchers\, clinicians\, data managers\, ERN and National Mirror Group members involved in or interested in ERDERA diagnostic research. \nRegister here. \n  \nAbout the ERDERA Diagnostic Research Workstream Webinar Series. \nThe series brings together ERN healthcare professionals\, clinicians\, geneticists\, researchers\, and other stakeholders to learn about the work\, progress\, and outcomes of the ERDERA Diagnostic Research Workstream (DRW). \nSessions will cover the full scope of the workstream — from governance and methodology to concrete analytical results — offering audiences a transparent and evolving view of how ERDERA is advancing diagnostics in rare diseases. \nDelivered as online webinars\, the series is accessible to both internal ERN audiences and external expert communities\, reflecting ERDERA’s commitment to open knowledge-sharing and collaboration across borders. \nFind out more here.
URL:https://erdera.org/event/diagnostic-research-workstream-session-2-data-sharing-data-management-ethics/
CATEGORIES:Clinical Research,Training and Education
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DTSTART;TZID=Europe/Berlin:20260916T110000
DTEND;TZID=Europe/Berlin:20260916T123000
DTSTAMP:20260914T104356Z
CREATED:20260914T075513Z
LAST-MODIFIED:20260914T104356Z
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SUMMARY:Public-Private Collaboration Accelerator - How to Pitch to Investors
DESCRIPTION:This webinar on how to pitch to investors is part of ERDERA’s investment readiness activities\, developed to help participants communicate their projects clearly and persuasively to potential funders. \nIt is the first in a series of Public webinars delivered under the Public-Private Collaboration Accelerator (PPCA)\, which supports researchers and innovators working on rare disease projects in engaging effectively with investors. The webinar will bring together two complementary perspectives: a joint interview with an academic researcher and a Venture Builder\, who will share their experience of working together over the past three years\, followed by a roundtable with VCs to discuss what investors look for when assessing early-stage projects. \nWho should attend\nThis webinar is intended for researchers working on rare disease translational projects within academia\, a hospital\, or an early-stage start-up\, as well as clinicians developing a therapeutic solution\, target or advanced concept who require strategic support to reach the next milestone. It is equally relevant to academics and SMEs seeking guidance\, resources and partners to strengthen their project’s path towards patients. \nSpeakers \nJoint Interview \n\nEric J. KREMER\, Research Director\, Inserm – Head of Research Team\, Institute of Molecular Genetics of Montpellier\nPierre-Albert COLCOMB\, Chief Operating Officer\, AMPLEIA\nModerator: Christine FETRO\, Head of Public-Private Partnerships & Research Valorization\, Foundation for Rare Diseases\n\nRoundtable Discussion \n\nJoão Ribas\, Partner\, Novo Holdings\nModerator: Pedro SILVA\, Head of Funding and Innovation Office\, Gulbenkian Institute for Molecular Medicine\nJaime Fernandez De Santaella\, Innovation & Sourcing\, BaseLaunch\nName TBC\, Innovation & Sourcing\, BaseLaunch\n\nRegister here.
URL:https://erdera.org/event/private-public-collaboration-accelerator-how-to-pitch-to-investors/
CATEGORIES:Accelerator,Training and Education
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