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DTSTART;VALUE=DATE:20261026
DTEND;VALUE=DATE:20261029
DTSTAMP:20260918T064938Z
CREATED:20260226T123002Z
LAST-MODIFIED:20260918T064938Z
UID:10000041-1792972800-1793231999@erdera.org
SUMMARY:World Orphan Drug Congress Europe 2026
DESCRIPTION:The World Orphan Drug Congress is the largest orphan drug & rare disease meeting of its kind across the globe. From cell and gene therapy\, genetic testing\, and market access\, to real world evidence\, this one meeting covers the whole orphan drugs value chain where science\, government and manufacturers all come together to create groundbreaking progress. \n\n26th October 2026 | Pre-Congress Workshops\n27th – 28th  October 2026 | Main Congress Days\nLocation: RAI Congress Centre\, Amsterdam
URL:https://erdera.org/event/world-orphan-drug-congress-europe-2026/
CATEGORIES:ERDERA
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BEGIN:VEVENT
DTSTART;TZID=Europe/Berlin:20261102T130000
DTEND;TZID=Europe/Berlin:20261102T140000
DTSTAMP:20261008T112406Z
CREATED:20261008T112406Z
LAST-MODIFIED:20261008T112406Z
UID:10000055-1793624400-1793628000@erdera.org
SUMMARY:The Role of Ethics in ATMP Research and Development
DESCRIPTION:What ethics issues can be raised\, and how can resolving them become an advantage? \nThis webinar will explore the ethics issues most encountered in advanced therapy medicinal product (ATMP) research. It will examine the role of ethics in helping ensure that research and its products comply with regulatory requirements and in supporting a smooth clinical translation. \nParticular focus will be placed on issues of special importance in rare diseases\, such as research involving children and the human genome\, both of which are central to ATMP research. \nThe session will also look at how ethics can balance the influence of different stakeholders and bring the work of researchers and regulators together in the service of patients. \nSpeaker:\nJoana Namorado \nWhen:\nMonday\, 2 November 2026\, from 13:00 to 14:00 CET \nThis webinar is part of the ERDERA Ethics & Regulatory webinar series. To see the dates of upcoming episodes\, please check here.
URL:https://erdera.org/event/the-role-of-ethics-in-atmp-research-and-development/
CATEGORIES:ERDERA,Training and Education
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20261125
DTEND;VALUE=DATE:20261127
DTSTAMP:20261001T095936Z
CREATED:20260929T144836Z
LAST-MODIFIED:20261001T095936Z
UID:10000053-1795564800-1795737599@erdera.org
SUMMARY:ERDERA Knowledge Exchange Meeting on Drug Repurposing for Rare Diseases
DESCRIPTION:The next ERDERA Knowledge Exchange Meeting\, taking place on 25–26 November in Riga\, will focus on drug repurposing for Rare Diseases\, with particular attention to opportunities for Underrepresented Countries (UCs). Participants will explore the drug repurposing pathway\, patient-centred approaches\, European initiatives and concrete examples from ERDERA-funded projects and national rare disease communities. Interactive discussions will address local barriers\, practical solutions and opportunities to build future collaborations within European networks. The meeting will conclude with closing remarks and next steps.\n\n\n\n\nThe meeting will offer both online and in-person participation. Register here.\n\n\n\n\n\n\n\n\nProgramme \nERDERA Knowledge Exchange Meeting on Drug Repurposing for Rare Diseases\n25–26 November\, Riga East University hospital\, (Hipokrāta iela 2\, Rīga) Latvia \n\n\n\nDay 1 — 25 November\n\n\n\n\nTime\nTitle\nSpeakers / details\n\n\n\n\n\nRegistration\n\n\n13.30–14:00\nCoffee break\n\n\nERDERA Introduction Session\nA short opening session to introduce ERDERA\, its role in rare disease research\, and the support landscape available across Europe.\n\n\n14:00–14.10\nWelcome\nBaiba Lāce. Clinical geneticist and Head of the Genetics Department at Riga East University Hospital; ERDERA WP24 ST 24.1 lead.\n\n\n14.10-14.30\nIntroductory presentation explaining ERDERA’s overall strategy and why drug repurposing is relevant within the broader rare disease ecosystem \n(On-line)\nDaria Julkowska. ERDERA scientific coordinator.\n\n\n14:30–14:50\nPresentation of the ERDERA Public-Private Collaboration Accelerator (PPCA) \n(On-line)\nXavier Merit. ERDERA Coordination.\n\n\n14.50-15.00\nWP24: Objectives\, Activities and Expected Outcomes:\nGonçalo Teixeira. ERDERA WP24 Lead for Underrepresented Countries.\n\n\nDrug Repurposing: Concepts and Applications\nThis session will exchange practical knowledge on how existing medicines can be explored for new uses in rare diseases\, from early identification of opportunities to routes toward patient access.\n\n\n15:00–15:20\nDrug repurposing for rare diseases: opportunities and impact \n(On-line)\nClaudia Fuchs / Zoe Alahouzou. EURORDIS representatives working in the rare disease field\, including Horizon Europe project REMEDi4ALL and patient-centred approaches to drug repurposing.\n\n\n15:20–15:50\nFrom discovery to patient access: the repurposing pathway:\nRick Thompson. CEO of Beacon for Rare Diseases\, with long-standing experience in developing drug repurposing work and supporting rare disease communities.\n\n\n15:50–16.10\nQ&A\n\n\n16.10- 16:30\nCoffee break\n\n\nEuropean drug repurposing initiatives and collaboration\nThis session will provide a knowledge exchange platform for European initiatives to present their approaches\, discuss practical collaboration models\, and explore how underrepresented countries can connect with ongoing repurposing activities. It will also highlight how these platforms and networks may support the development of collaborations and project ideas for future ERDERA Joint Transnational Calls.\n\n\n16:30–16:50\nREPO4EU\nHarald H.H.W. Schmidt. REPO4EU representative presenting mechanism-based drug repurposing and its potential to reduce time and cost in drug development.\n\n\n16:50–17:10\nEATRIS / REMEDi4ALL\nAnton Ussi. EATRIS ERIC / REMEDi4ALL. Operations & Finance Director at EATRIS ERIC\, specialising in public-public and public-private collaboration for translational medicine.\n\n\n17:10–17:40\nPanel discussion: How can underrepresented countries engage with European repurposing initiatives?\nPanellists: Rick Thompson\, Anton Ussi and Harald H.H.W. Schmidt \nModerator: Gonçalo Teixeira \nFormat: Moderated discussion and open exchange with participants.\n\n\n\nInformal get-together\n\n\n\n\n\n\nDay 2 — 26 November\n\n\n\n\nTime\nTitle\nSpeakers / details\n\n\n\n\nExperiences in Underrepresented Countries\nThis session will highlight successful examples of drug repurposing from underrepresented countries and disease communities.\n\n\n09:20–09:40\nAdvancing rare disease drug repurposing through collaborative preclinical research:\nEdgars Liepins. Leading Researcher\, The National Institute of Research and Innovation (NIRI)\, Latvia.\n\n\n09:40–10:00\nSATB2 syndrome treatment example\, Slovenia\nDunja Urbančič. SATB2 Europe. Representative involved in rare disease patient and clinical activities related to SATB2 syndrome.\n\n\n10:00–10:20\nPACS2 syndrome example\, Poland\nDominik Cysewski. PACS2 Research Foundation / Medical University of Bialystok. Representative of PACS2 syndrome research and patient-driven activities in Poland.\n\n\n10.20-10.40\nRADICAL-CDG Repurposing medication\, Advancing delivery\, and Deploying Innovative Chemistry to Aid the Lives of patients with Congenital Disorders of Glycosylation:\nHana Hansikova (TBC). First Faculty of Medicine\, Charles University\, Department of Pediatrics and Inherited Metabolic Diseases (Czechia)\n\n\n10.40-11.00\nMSD (multiple sulfatase deficiency) Action experience\, Ireland:\nAlan Finglas\, MSD Action. Alan Finglas is a patient advocate who founded MSD Action Foundation after his son was diagnosed with multiple sulfatase deficiency.\n\n\n11:00–11:30\nPanel Discussion: Local Bottlenecks and Shared Solutions. Building Future Collaborations \nAn interactive discussion on the main barriers to advancing drug repurposing locally\, with a focus on exchanging practical solutions\, stakeholder perspectives and opportunities for European alignment.\nPanellists: Dunja Urbančič\, Dominik Cysewski\, Hana Hansikova\, Alan Finglas \nModerator: Edgars Liepins\n\n\n11:30\nClosing remarks and next steps\n\n\n11:30-12:00\nCoffee break\, end of event\n\n\n\n\n\n\n  \n\n\n\nLearn more about ERDERA’s International Capacity Alignment efforts and they balance progress with global benchmarks\, harvesting national insight\, integrating proven methods\, and circulating new advances across borders.
URL:https://erdera.org/event/erdera-knowledge-exchange-meeting-on-drug-repurposing-for-rare-diseases/
CATEGORIES:ERDERA,International Alignment
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BEGIN:VEVENT
DTSTART;TZID=UTC:20261214T150000
DTEND;TZID=UTC:20261214T160000
DTSTAMP:20261022T091040Z
CREATED:20261022T090149Z
LAST-MODIFIED:20261022T091040Z
UID:10000056-1797260400-1797264000@erdera.org
SUMMARY:Information Webinar - ERDERA Joint Transnational Call 2027
DESCRIPTION:This information webinar for potential applicants to the 2027 Joint Transnational Call focuses on catalysing collaborative research for recently identified rare diseases. \nThe webinar is intended for potential applicants to ERDERA’s 2027 Joint Transnational Call\, “Catalysing Collaborative Research for Recently Identified Rare Diseases”. The call aims to support multinational\, interdisciplinary collaborations addressing recently identified rare diseases that remain scientifically underserved. \nIts focus is on generating the foundational knowledge needed for future therapeutic development\, through natural history studies and patient registries\, biomarker research\, relevant disease models and investigation of disease mechanisms. \nConsortia are expected to actively involve patient partners from the preparation of their proposals. Funding eligibility is subject to national and regional requirements\, and applications will follow a two-stage procedure\, with pre-proposals due on 1 February 2027 and full proposals on 24 June 2027. \nPlease note that spots for this event are limited. If the link does not allow you to register\, please keep checking this website for further updates on how to receive the recording of the event. \n 
URL:https://erdera.org/event/information-webinar-erdera-joint-transnational-call-2027/
CATEGORIES:Clinical Research,Data Hub,ERDERA,Expertise Services,Funding
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LOCATION:
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20270310
DTEND;VALUE=DATE:20270313
DTSTAMP:20261006T104936Z
CREATED:20260921T081359Z
LAST-MODIFIED:20261006T104936Z
UID:10000040-1804636800-1804895999@erdera.org
SUMMARY:RE(ACT) Congress 2027
DESCRIPTION:RE(ACT) Congress 2027\nBuilding on the legacy of the RE(ACT) Congress series (now reaching its ninth edition)\, RE(ACT) continues to serve as a meeting point for scientific innovation and real-world impact. The Congress brings together international leaders\, renowned experts\, and emerging talents from across disciplines to share breakthrough results\, challenge ideas\, and help shape the research and policy landscape that will accelerate progress in rare diseases. \nOrganised by the European Rare Diseases Research Alliance (ERDERA)\, the International Rare Diseases Research Consortium (IRDiRC)\, and BLACKSWAN Foundation\, the RE(ACT) Congress embodies a shared commitment to overcoming rare disease challenges through collective action\, open collaboration\, and knowledge-sharing. \nFind out more at react-congress.org
URL:https://erdera.org/event/react-congress-2027/
CATEGORIES:ERDERA
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20270607
DTEND;VALUE=DATE:20270611
DTSTAMP:20260901T132033Z
CREATED:20260729T092052Z
LAST-MODIFIED:20260901T132033Z
UID:10000047-1812326400-1812671999@erdera.org
SUMMARY:Open Academy x ERDERA Schools
DESCRIPTION:Join us in Barcelona on 7-10 June 2027 and gain the knowledge\, skills and confidence to strengthen your advocacy work in medicines development and pre-clinical research. The final dates will be announced soon. Open Academy x ERDERA Schools offer a blended learning approach combining these formats. Our programme is developed with expert trainers identified from the research\, regulatory\, industry and patient community to build competence and provide support and advice. \nFind out more here.
URL:https://erdera.org/event/two-open-academy-schools-one-week-of-face-to-face-training-bringing-researchers-and-patient-representatives-together-for-parallel-and-joint-sessions/
CATEGORIES:ERDERA,Patient Public Involvement and Engagement (PPIE),Training and Education
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