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CREATED:20260109T093930Z
LAST-MODIFIED:20260109T101452Z
UID:10000029-1772438400-1782925200@erdera.org
SUMMARY:Data\, ethics and AI training for rare disease advocates
DESCRIPTION:The second edition of the Data\, Ethics and AI training is here! Developed under ERDERA – the European Rare Diseases Research Alliance\, this second edition responds to the growing need for patient advocates to understand data management\, ethical considerations and the role of AI in rare disease research\, and to engage meaningfully with researchers and decision-makers. \nThis hybrid programme will combine online training from March to July 2026 (6–8 hours spread over 5 months) and iIn-person sessions on 14–15 September 2026 in Barcelona. \nApplications close 2 February 2026. \nLearn more & apply here.
URL:https://erdera.org/event/data-ethics-and-ai-training-for-rare-disease-advocates/
CATEGORIES:Patient Involvement (PPIE),Training & Education
ATTACH;FMTTYPE=image/jpeg:https://erdera.org/wp-content/uploads/2026/01/1767801707477-1-e1767955392719.jpg
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BEGIN:VEVENT
DTSTART;TZID=Europe/Berlin:20260706T150000
DTEND;TZID=Europe/Berlin:20260706T170000
DTSTAMP:20260624T172250
CREATED:20260603T085817Z
LAST-MODIFIED:20260603T091147Z
UID:10000043-1783350000-1783357200@erdera.org
SUMMARY:ERDERA Clinical Trial Call 2026 - Information Webinar
DESCRIPTION:ERDERA will launch its Clinical Trial Call 2026 (ECTC) on 1 July 2026\, which will support multinational\, GCP‑compliant early‑phase interventional clinical trials in the field of rare diseases. This call represents a key opportunity to advance collaborative research efforts and accelerate the development of innovative therapeutic approaches for patients affected by rare conditions. \n\nTo provide further information and guidance on the call\, ERDERA will host an informational webinar on 6 July 2026\, from 15:00 to 17:00. During this session\, participants will have the opportunity to hear directly from ERDERA experts\, who will present the objectives\, scope\, and requirements of the call\, and address questions from prospective applicants.
URL:https://erdera.org/event/erdera-clinical-trial-call-2026-information-webinar/
CATEGORIES:Funding
ATTACH;FMTTYPE=image/png:https://erdera.org/wp-content/uploads/2026/06/ERDERA-JTC-2026-1.png
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20261026
DTEND;VALUE=DATE:20261029
DTSTAMP:20260624T172250
CREATED:20260226T123002Z
LAST-MODIFIED:20260226T124050Z
UID:10000041-1792972800-1793231999@erdera.org
SUMMARY:World Orphan Drug Congress Europe 2026
DESCRIPTION:The World Orphan Drug Congress is the largest orphan drug & rare disease meeting of its kind across the globe. From cell and gene therapy\, genetic testing\, and market access\, to real world evidence\, this one meeting covers the whole orphan drugs value chain where science\, government and manufacturers all come together to create groundbreaking progress. \n\n26th October 2026 | Pre-Congress Workshops\n27th – 28th  October 2026 | Main Congress Days\nLocation: RAI Congress Centre\, Amsterdam
URL:https://erdera.org/event/world-orphan-drug-congress-europe-2026/
CATEGORIES:ERDERA
ATTACH;FMTTYPE=image/jpeg:https://erdera.org/wp-content/uploads/2026/02/1.jpg
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20270310
DTEND;VALUE=DATE:20270313
DTSTAMP:20260624T172250
CREATED:20260226T091359Z
LAST-MODIFIED:20260519T121432Z
UID:10000040-1804636800-1804895999@erdera.org
SUMMARY:RE(ACT) Congress 2027
DESCRIPTION:Building on the legacy of the RE(ACT) Congress series (now reaching its ninth edition)\, RE(ACT) continues to serve as a meeting point for scientific innovation and real-world impact. The Congress brings together international leaders\, renowned experts\, and emerging talents from across disciplines to share breakthrough results\, challenge ideas\, and help shape the research and policy landscape that will accelerate progress in rare diseases. \nOrganised by the European Rare Diseases Research Alliance (ERDERA)\, the International Rare Diseases Research Consortium (IRDiRC)\, and BLACKSWAN Foundation\, the RE(ACT) Congress embodies a shared commitment to overcoming rare disease challenges through collective action\, open collaboration\, and knowledge-sharing. \n 
URL:https://erdera.org/event/react-congress-2027/
CATEGORIES:ERDERA
ATTACH;FMTTYPE=image/png:https://erdera.org/wp-content/uploads/2026/02/Captura-de-pantalla-2026-02-26-110930.png
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20270612
DTEND;VALUE=DATE:20270616
DTSTAMP:20260624T172250
CREATED:20260618T125124Z
LAST-MODIFIED:20260618T125124Z
UID:10000044-1812758400-1813103999@erdera.org
SUMMARY:European Human Genetics Conference 2027
DESCRIPTION:ESHG 2027 Conference will take place on 12–15 June 2027 in Rotterdam\, The Netherlands. The European Society of Human Genetics is planning the event as a hybrid conference\, allowing participation in person or online through a dedicated virtual conference platform. The official event website is ESHG 2027 Conference website. \nRegistration for ESHG 2027 will open in February 2027. According to the official registration information\, participants can register only for the full conference\, and in-person and online-only participation are handled as separate registration types. Questions about registration can be directed to conference@eshg.org.
URL:https://erdera.org/event/eshg2027/
LOCATION:Rotterdam Ahoy\, Ahoyweg 10\, Rotterdam\, 3084BA\, Netherlands
CATEGORIES:Clinical Research
ATTACH;FMTTYPE=image/jpeg:https://erdera.org/wp-content/uploads/2026/06/ESHG2027-scaled.jpg
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