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X-WR-CALNAME:ERDERA
X-ORIGINAL-URL:https://erdera.org
X-WR-CALDESC:Events for ERDERA
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DTSTART:20250101T000000
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260302T080000
DTEND;TZID=UTC:20260701T170000
DTSTAMP:20260612T223546
CREATED:20260109T093930Z
LAST-MODIFIED:20260109T101452Z
UID:10000029-1772438400-1782925200@erdera.org
SUMMARY:Data\, ethics and AI training for rare disease advocates
DESCRIPTION:The second edition of the Data\, Ethics and AI training is here! Developed under ERDERA – the European Rare Diseases Research Alliance\, this second edition responds to the growing need for patient advocates to understand data management\, ethical considerations and the role of AI in rare disease research\, and to engage meaningfully with researchers and decision-makers. \nThis hybrid programme will combine online training from March to July 2026 (6–8 hours spread over 5 months) and iIn-person sessions on 14–15 September 2026 in Barcelona. \nApplications close 2 February 2026. \nLearn more & apply here.
URL:https://erdera.org/event/data-ethics-and-ai-training-for-rare-disease-advocates/
CATEGORIES:Patient Involvement (PPIE),Training & Education
ATTACH;FMTTYPE=image/jpeg:https://erdera.org/wp-content/uploads/2026/01/1767801707477-1-e1767955392719.jpg
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260609
DTEND;VALUE=DATE:20260623
DTSTAMP:20260612T223546
CREATED:20251205T122503Z
LAST-MODIFIED:20260116T075546Z
UID:10000028-1780963200-1782172799@erdera.org
SUMMARY:World Orphan Drug Congress USA 2026
DESCRIPTION:The World Orphan Drug Congress USA 2026 is presented by Terrapinn as a major global meeting point for the rare disease and orphan drug community\, bringing together more than 2 000 participants from over 50 countries in Boston on 9–11 June 2026. Over three days\, the congress combines plenary sessions\, focused thematic streams and pre‑conference workshops that cover patient data\, next generation therapies\, clinical development and regulation\, pricing and reimbursement\, AI and digital health\, diagnosis and drug discovery\, early access programmes and real‑world evidence. The programme features . \nAlongside the scientific and policy content\, the event places strong emphasis on networking and partnership building through panel discussions\, roundtables\, exhibition space\, one‑to‑one partnering meetings and a start‑up and innovation showcase. Patient advocates\, hospital and healthcare professionals\, European Reference Networks and investors are actively encouraged to take part\, with a limited number of complimentary VIP passes and opportunities for poster presentations on the expo floor. For ERDERA\, this congress offers a platform to strengthen international alignment\, clinical research collaboration and data‑driven innovation with global partners working on rare diseases and orphan drugs.
URL:https://erdera.org/event/world-orphan-drug-congress-usa-2026/
LOCATION:Boston Convention and Exhibition Center\, Boston\, MA\, Boston\, MA\, United States
CATEGORIES:Accelerator,Clinical Research,Data Hub,Expertise Services,International Alignment,Patient Involvement (PPIE)
ATTACH;FMTTYPE=image/jpeg:https://erdera.org/wp-content/uploads/2025/12/1656-world-orphan-drug-congress-usa-2026_pages-to-jpg-0001.jpg
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