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DTSTART;TZID=Europe/Madrid:20261021T143000
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SUMMARY:ERDERA’s Open Session – 3rd General Assembly Meeting
DESCRIPTION:The ERDERA consortium will come together in Coimbra\, Portugal\, for its third General Assembly Meeting\, marking the end of the partnership’s second year and providing an opportunity to review progress\, deepen discussions and strengthen collaboration. ERDERA will also welcome the wider rare diseases community to its free Open Session\, broadcasted live online. \n\nDedicated to ultra-rare diseases\, the session will share inspiring research and patient stories while examining innovative methodological and regulatory approaches to clinical research and treatment development. It will connect these developments with ERDERA’s work and its commitment to advancing research alongside patients\, with the shared goal of improving the lives of people living with rare diseases. \nThe session is free to attend\, but registration is required. \nAgenda \nTimes are in WEST (Portugal time)\n13:30 – 14:15 – Welcome Speeches\nAmilcar Falcão\, Rector of the University of Coimbra \nDaria Julkowska\, PhD. ERDERA Coordinator\, INSERM \nDusan Sandor\, European Commission\, DG Research and Innovation\, HaDEA \n14:15 – 15:00 – Keynote speech (Remote): Title TBD \nPr. Sonia Vallabh\, PhD. Director\, Prion Therapeutic Science\, Broad Institute\, Boston MA\, USA (remote) \n15:00 – 15:45 – Keynote speech (Remote): “Regulatory Preparedness for the Next Generation of Rare Disease Therapies: Innovation\, Evidence and Patient-Centered Development “\nJulian Beach\, Medicines and Healthcare products Regulatory Agency\, UK(Remote) \n15:45 – 16:30 – Keynote speech: Title TBD\nAnnemieke Aartsma-Rus\, PhD. Professor of translational genetics. Department of Human Genetics. Leiden\, Netherlands \nRegister now
URL:https://erdera.org/event/erderas-open-session-3rd-general-assembly-meeting/
CATEGORIES:ERDERA
ATTACH;FMTTYPE=image/png:https://erdera.org/wp-content/uploads/2026/09/October-2026-5.png
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