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X-WR-CALDESC:Events for ERDERA
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DTSTART:20250101T000000
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DTSTART;VALUE=DATE:20260616
DTEND;VALUE=DATE:20260618
DTSTAMP:20260428T145714
CREATED:20260309T105519Z
LAST-MODIFIED:20260408T122426Z
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SUMMARY:Advancement of Treatments for Rare Diseases
DESCRIPTION:The Cyprus Institute of Neurology & Genetics and the Deputy Ministry of Research\, Innovation and Digital Policy\, are organising the conference “Advancement of Treatments for Rare Diseases” on 16-17 June 2026\, at the Amphitheater\, The Cyprus Institute of Neurology & Genetics Nicosia\, Cyprus. \n\nRare Diseases affect approximately 30 million people across the European Union and present unique challenges due to their complexity\, rarity\, and limited treatment options. Advancing research\, improving access to innovative therapies\, and strengthening collaboration across Europe are essential to improving outcomes for patients and their families. \nThe Conference will feature the following key themes: \n\nStrengthening EU Collaboration for Rare Diseases\nAdvancing Research\, Innovation & Therapeutic Development\nImproving Regulatory Frameworks for Orphan Drugs\nEnsuring Accessibility\, Equity & Patient-Centred Care\nEnhancing Data Infrastructure\, Security & Digital Innovation\n\nThe target audience includes government ministries and public authorities; healthcare providers and clinical experts; researchers and the scientific community; representatives from the pharmaceutical and biotechnology industry; patient organisations and advocacy groups; data\, digital health\, and technology specialists; health economics\, ethics\, and legal experts; European funding bodies and research agencies; NGOs; and other high-level multi-stakeholder representatives. \nThe two-day event will highlight the EU’s ambition to make Europe a global leader in life sciences by 2030 and will focus on translating research and policy initiatives into tangible benefits for Rare Disease patients through better prevention\, diagnosis\, and treatment.
URL:https://erdera.org/event/advancement-of-treatments-for-rare-diseases/
LOCATION:Cyprus Institute of Neurology and Genetics\, Iroon Avenue 6\, Agios Dometios\, Nicosia\, 2371\, Cyprus
CATEGORIES:Clinical Research,Data Hub,ERDERA,Expertise Services,Funding,International Alignment,Patient Involvement (PPIE)
ATTACH;FMTTYPE=image/png:https://erdera.org/wp-content/uploads/2026/01/Captura-de-pantalla-2026-04-08-142004.png
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