ERDERA Learning Portal
The ERDERA Learning Portal brings together courses and resources for researchers, clinicians, patient representatives, policymakers, and industry professionals, suited to different levels of knowledge. Some of the training and resources presented are developed or endorsed by ERDERA, while others are provided by external organisations and are not ERDERA training. By supporting skills development, encouraging collaboration, and facilitating knowledge exchange, ERDERA helps connect people and expertise across the rare disease research community.
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Contact the Training & Education Work Stream. Please note that you will leave the ERDERA environment
Closed training
Materials available
Enhancing Patient-Centricity in Rare Disease Clinical Trials
Don’t miss this opportunity to share your expertise and help shape the future of clinical research in ultra-rare conditions!
webinar
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intermediate
- Clinical Trials | Patient Advocacy | Patient engagement | Patient Public Involvement and Engagement (PPIE) | Ultra-rare diseases
Framework for Patient Engagement in Clinical Trials
webinar
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basic
- Clinical Trials | EJP RD | Patient engagement | Patient Public Involvement and Engagement (PPIE)
Working with patients
Patients’ opinions, insights, experiences and expertise must be integrated into the medical or research process.
e-learning
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basic
- Patient engagement | Patient Public Involvement and Engagement (PPIE) | REMEDI4ALL
Management of multinational clinical trials for rare diseases
Practical online course on planning and managing multinational clinical trials across Europe, including regulatory/ethics, roles, budgets, and patient engagement.
e-learning
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basic
- Clinical Research Networks (CRNs) | Clinical Trials | ERDERA | European Clinical Research Infrastructure Network (ECRIN) | Patient Public Involvement and Engagement (PPIE) | Regulatory