ERDERA has received funding from the European Union’s Horizon Europe research and innovation programme under grant agreement N°101156595.
Views and opinions expressed are those of the author(s) only and do not necessarily reflect those of the European Union or any other granting authority, who cannot be held responsible for them.
© 2024 | ERDERA — European Rare Diseases Research Alliance
ERDERA is coordinated by Insem
Paris, October 13, 2024 – The European Rare Diseases Research Alliance (ERDERA) has been prominently featured in the recent edition of Échos de l’Europe. This publication explores ERDERA’s, inception, its pillars and roadmap, highlighting collaborative efforts aimed at improving the […]
Nearly 600 people followed ERDERA opening ceremony either online or in person in central Paris on 28 October. We summarise next some highlights from the speakers who took the floor during the event that marked the start of a new […]
The European Rare Diseases Research Alliance (ERDERA) is excited to announce the upcoming launch of its Joint Transnational Call (JTC) for Proposals 2025. Set to officially open on December 10, 2024, this call will invite research teams from across Europe […]
ERDERA was launched in September 2024 with a remarkable budget of 380 million euros, marking a significant commitment from the European Union, Horizon Europe, and member states. Coordinated by the National Institute of Health and Medical Research (INSERM) in France, […]
In a recent interview with Science Business, ERDERA Scientific Coordinator Daria Julkowska discussed the upcoming launch of the European Rare Diseases Research Alliance (ERDERA), its mission, and its critical role in advancing rare disease research across Europe. This partnership, funded under Horizon Europe, is […]
The European Rare Diseases Research Alliance (ERDERA) is excited to announce the call for nominations for its Multistakeholder Advisory Board (MAB). Our mission is to transform the landscape of rare disease research in Europe and improve the lives of over […]
The ERICA ERN Research Conference will take place from December 11th to December 13th, 2024 in Udine, Italy and will be hosted by MetabERN. The aim of the ERICA consortium, in which all 24 European Reference Networks (ERNs) take part, […]
The EURORDIS Open Academy accompanies patient advocates and researchers by offering rare disease-specific comprehensive training programmes that empower them with the knowledge, skills and confidence they need to engage with different stakeholders as equal partners. Since 2008, EURORDIS has been providing training programmes […]
The European Rare Diseases Research Alliance (ERDERA) kicks off this September, with an estimated budget of 380 million euros and the aim of improving the lives of 30 million rare disease patients in Europe and beyond. The new partnership, championed […]
Freya2024-11-13T11:21:36+02:00November 13th, 2024|
Paris, October 13, 2024 – The European Rare Diseases Research Alliance (ERDERA) has been prominently featured in the recent edition of Échos de l'Europe. This publication explores ERDERA’s, inception, its pillars and roadmap, highlighting collaborative efforts aimed at improving the lives of rare disease patients across Europe. It includes an editorial by Elli Chatzopoulou, and READ MORE
gisela2024-10-29T00:06:57+02:00October 28th, 2024|
Nearly 600 people followed ERDERA opening ceremony either online or in person in central Paris on 28 October. We summarise next some highlights from the speakers who took the floor during the event that marked the start of a new era in rare disease research. Nacer Boubena Nacer Boubena, Scientific Director, Head READ MORE
Albert2024-11-12T18:02:59+02:00October 16th, 2024|
The European Rare Diseases Research Alliance (ERDERA) is excited to announce the upcoming launch of its Joint Transnational Call (JTC) for Proposals 2025. Set to officially open on December 10, 2024, this call will invite research teams from across Europe and beyond to submit collaborative projects focused on “Pre-clinical therapy studies for rare diseases using READ MORE
Oscar2024-10-25T12:12:13+02:00October 15th, 2024|
ERDERA was launched in September 2024 with a remarkable budget of 380 million euros, marking a significant commitment from the European Union, Horizon Europe, and member states. Coordinated by the National Institute of Health and Medical Research (INSERM) in France, this ambitious partnership unites over 170 organizations from the public and private sectors to advance READ MORE
Oscar2024-10-11T07:57:33+02:00October 10th, 2024|
In a recent interview with Science Business, ERDERA Scientific Coordinator Daria Julkowska discussed the upcoming launch of the European Rare Diseases Research Alliance (ERDERA), its mission, and its critical role in advancing rare disease research across Europe. This partnership, funded under Horizon Europe, is set to revolutionize the field of rare diseases with a seven-year budget of €380 million. The READ MORE
Albert2024-10-23T19:56:57+02:00September 30th, 2024|
The European Rare Diseases Research Alliance (ERDERA) is excited to announce the call for nominations for its Multistakeholder Advisory Board (MAB). Our mission is to transform the landscape of rare disease research in Europe and improve the lives of over 30 million people living with rare diseases. By supporting innovative research, developing new diagnostic methods, READ MORE
Albert2024-10-11T11:32:26+02:00September 19th, 2024|
The ERICA ERN Research Conference will take place from December 11th to December 13th, 2024 in Udine, Italy and will be hosted by MetabERN. The aim of the ERICA consortium, in which all 24 European Reference Networks (ERNs) take part, is to build on the strength of the individual ERNs and create a platform that READ MORE
Albert2024-10-11T18:50:00+02:00September 18th, 2024|
The EURORDIS Open Academy accompanies patient advocates and researchers by offering rare disease-specific comprehensive training programmes that empower them with the knowledge, skills and confidence they need to engage with different stakeholders as equal partners. Since 2008, EURORDIS has been providing training programmes aimed at empowering patients and researchers to ensure they have the confidence and knowledge needed READ MORE